Wednesday 3 May 2017
Royal Society of Medicine
1 Wimpole Street
About the event
This is a great opportunity for medics, early in their career to hear from top specialists and patient advocates about why rare diseases are so important. Not only do rare diseases affect 3.5 million people in the UK but 75% of those are children. Many rare diseases that were once life-limiting can now be treated and depend on early diagnosis for this to happen.
This meeting is a chance to learn about something different and change perceptions about rare diseases. Individually they're rare but together they are common.
At the end of this meeting the participants will be able to:
Theme: Rare Diseases - Individually rare but altogether common. How can learning about rare diseases benefit the wider population?
Deadline: Wednesday 5th April 2017
Prize: £100 Amazon voucher for the winner and £50 Amazon vouchers for 2 runners up
For more information or to apply, click here.
We are grateful to Alexion, Orphan Europe and Sobi Ltd for supporting this meeting. Please note that none of the companies listed have had any influence or involvement over the agenda, content or organisation of this meeting.
Registration, tea and coffee
Dr Lucy McKay, Students4RareDiseases
A parents perspective of an ultra rare disease
Mrs Kay Parkinson, CEO, Cambridge Rare Disease Network
Endocrine system – neuroendocrine tumours
Dr Raj Srirajaskanthan, Consultant in Gastroenterology and Neuroendocrine Tumours, King's College Hospital
Tea and coffee break with poster judging
Cardiovascular system - spontaneous coronary artery dissection (SCAD)
Dr Abtehale Al-Hussaini, Consultant Cardiologist and NIHR RD-TRC Clinical Fellow in Spontaneous Coronary Artery Dissection
Neurological system - Batten's disease
Professor Paul Gissen, Consultant in Paediatric Metabolic Medicine, Great Ormond Street Hospital
“It’s not all in my head!”: The complex relationship between rare diseases and mental health problems
Rebecca Nunn, Winner of Findacure Student Voice Essay Prize
Close of meeting
All members are invited to attend and join the drinks reception after
View rates for all membership types:View rates
Enjoy our excellent accommodation facilities right here at the RSM
Stay at our Grade I listed Georgian townhouse just 5 mins walk from RSM
For information on this event, contact Stacey WarnerTel: 02072903940 Email: firstname.lastname@example.org