Innovations in patient and public involvement in research on palliative care

Date and time Tue 18 Apr 2023 from 2:00pm to 4:00pm
Location Online
Organised by Palliative Care

This webinar will focus on identifying, sharing and building sustainable innovations for diverse and inclusive public involvement in research for people affected by serious illness.

This virtual meeting will showcase the NIHR Palliative and End of Life Care Partnerships and their innovations to create inclusive opportunities for public involvement in research and build sustainable infrastructure for public involvement.

Benefits of attending:

Understand methods for sustainable and innovative approaches for public involvement to maximize diversity and inclusivity in research on palliative care
Explore how to evaluate the impact of public involvement in palliative care research
Identify opportunities to develop public involvement in research involving people affected by serious illness.

Dr Claire Kidgell

Assistant Director, National Institute for Health Research

Speaker's biography

Dr Claire Kidgell has over 16 years’ experience working in research management and administration having both worked for Cardiff University as a Strategic Research Co-ordinator and for the Wellcome Trust as a Science Portfolio Advisor. She completed a PhD in microbiology at Imperial College London and undertook postdoctoral research at the Scripps Research Institute, San Diego, USA.

She joined the National Institute for Health Research (NIHR) in 2010 as Senior Research Manager for the NIHR Public Health Research programme with responsibility for the management and oversight of the research application process from topic identification through to the implementation of funding decisions.

In November 2016, she became an Assistant Director leading on the identification and prioritisation of research questions for NIHR. She is also currently Head of Programme for the NIHR Public Health Research programme working to support programme delivery specifically strategic oversight and the implementation of several new initiatives aimed at tackling wider preventable risk factors and determinants of health.

Ms Tasleem Aziz

Patient and Public Involvement Contributor, The Deep End Clinical Research Network (CRN)

Speaker's biography

Ms Tasleem Aziz has been a member of the Deep End PPI group for around 3 years, and has supported several research projects with her unique perspective as a South-Asian woman. She is a leader within her local community, including organising health education and social events for local women.

View the programme

2:00pm

Welcome and introduction

Dr Libby Sallnow, President, Palliative Care Section, The Royal Society of Medicine and Professor Catherine Evans, Palliative Care Section, The Royal Society of Medicine

Session 1

2:05pm

Keynote speaker presentation

Ms Tasleem Aziz, Patient and Public Involvement Contributor, The Deep End Clinical Research Network (CRN)

Session 2: Lessons from the partnerships

2:15pm

What we have achieved and where we have more to do; Reflections on the involvement of parents and young people in our research

Professor Lorna Fraser, Palliative Care and Child Health, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King’s College London, Dr George Peat, Family Advisory Board, University of York and Ms Sarah Ricketts, Parent Representative, Martin House Research Centre (MHRC), Family Advisory Board

2:25pm

Hearing the voices of older people living with advancing frailty – are we on mute?

Dr Nadia Brookes, Senior Research Fellow, Centre for Health Services Studies, University of Kent, Dr Sarah Combes, Research Fellow, School of Health Sciences, University of Surrey and Ms Wendy Parkin, Public Contributor

2:35pm

Using creative community engagement methods to explore experiences of palliative care in rural, coastal and low-income areas

Ms Lorraine Hansford, Research Fellow, University of Exeter, Ms Amanda Lynn, Community Builder, Lead Coordinator, Torbay Community Development Trust and Sheena McCready

2:45pm

Palliative partners in head and neck cancer

Dr Catriona Mayland, Yorkshire Cancer Research, Senior Clinical Research Fellow, The Medical School, University of Sheffield and Ms Val Bryant, Public Contributor

2:55am

KEech End of life research Partnership NETwork (KEEPNET): A partnership to improve access for palliative and end-of-life care among the ethnic minority population across Hertfordshire, Bedfordshire, and Milton Keynes

Professor Gurch Randhawa, Diversity in Public Health, Institute for Health Research, University of Bedfordshire and Ms Elaine Tolliday, Deputy Chief Executive Officer and Clinical Director, Keech Hospice Care

3:05pm

Lessons from the RE-EQUIPP care partnership - reducing inequalities through Integration of primary and palliative care

Dr Kate Fryer, Research Associate, The Medical School, University of Sheffield and Ms Tasleem Aziz

3:15pm

Developing palliative and end-of-life care research partnerships and capacity in the North West Coast of England

Ms Lesley Dunleavy, Senior Research Associate, Faculty of Health and Medicine, Lancaster University and Ms Andrea Partridge, Public Contributor, Lancaster University

3:25pm

Debate and panel discussion

Session 3: Keynote speaker

3:45pm

National Institute for Health Research: Meeting the needs of underserved communities

Dr Claire Kidgell, Assistant Director, National Institute for Health Research

3:55pm

Closing remarks

4:00pm

Close of meeting

Registration for this webinar will close 1 hour prior to the start time. You will receive the webinar link 1 hour before the meeting. Late registrations will not be accepted.

Webinar recordings will be available for registered delegates up to 60 days after the live webinar, via Zoom. The link will be sent 24 hours after the webinar takes place.

This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.

Innovations in patient and public involvement in palliative care research

About this event

Key speakers