About this event

  • Date and time Tue 22 Nov 2022 from 9:00am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Paediatrics and Child Health

Attend this event to review the unprecedented changes in cystic fibrosis management over the past three years, including updates on CTFR modulation and other emerging therapies.

Our expert speakers will examine how the COVID-19 pandemic has effected patients with cystic fibrosis, both in terms of their care and the psychological and physical impact.

This event will be held in person to facilitate face-to-face meetings, networking and shared learning.

Participants will be able to:

  • Be aware of emerging therapies
  • Appreciate the challenges and lessons learnt during the COVID-19 pandemic
  • Understand how to manage pregnancy in cystic fibrosis 
  • Understand the changing role and applications of the Cystic Fibrosis Registry


Call for Fellows cases:

The fellows’ round session will include 4 cases from paediatric and adult departments. Each talk will be allocated 20 minutes, case presentations should last 10-15 minutes to allow 5-10 minutes for discussion.

If you would like to submit a case, please send a single side of A4 outlining the case and highlighting discussion points to: anna.shawcross@mft.nhs.uk and r.pabary@rbht.nhs.uk

Deadline for case submission: Thursday 15 September 2022

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We would like to thank our sponsor PARI for their support of this meeting. Please note that the main scientific programme and content has not been influenced in any way by the sponsor.


View the programme

Registration, tea and coffee
Welcome and introduction

Dr Anna Shawcross and Dr Rishi Pabary

COVID-19 and cystic fibrosis

Dr Ross Langley, Consultant in Paediatric Respiratory and Sleep Medicine and NRS Research Fellow, Royal Hospital for Children

Psychological implications of the COVID-19 pandemic for people with cystic fibrosis

Dr Sally Harris, Paediatric Clinical Psychologist in Cystic Fibrosis, Royal Alexandra Children's Hospital 

Tea and coffee break
CFTR modulators: Are we there, or is there further to go?

Professor Jane Davies, Professor of Paediatric Respiratory and Experimental Medicine, National Heart and Lung Institute, Imperial College London and Honorary Consultant in Paediatric Respiratory Medicine, Royal Brompton Hospital

Psychological implications of CFTR modulation for people with cystic fibrosis

Dr Rachel Massey-Chase, Clinical Psychologist, Adult Cystic Fibrosis Service, King’s College Hospital, Psychology Chair, UK Psychosocial professionals in CF group

Harnessing the power of cystic fibrosis registries: Learnings to date from UK randomised registry trials

Dr Gwyneth Davies, UK Research and Innovation Future Leaders Fellow, Clinical Associate Professor and Honorary Consultant Paediatrician, University College London Great Ormond Street Institute of Child Health

Managing pregnancy in cystic fibrosis

Dr Imogen Felton, Consultant in Respiratory Medicine and Adult Cystic Fibrosis, Royal Brompton Hospital

Fellows’ round

Is it/isn’t it? (Part 1)

Dr Simone Hadjisymeou Andreou, Paediatric Respiratory GRID trainee, Royal Brompton Hospital

Is it/isn’t it? (Part 2)

Dr Junaid Manzoor, King’s College Hospital

Panel discussion
Tea and coffee break
Thinking outside of the bronchus

Dr Jonathan Twynam-Perkins, Paediatric Respiratory Registrar, NHS Lothian

Guillain-Barre in an adult with cystic fibrosis

Dr Rebecca Hughes, Respiratory ST5, Liverpool Heart and Chest Hospital

The year(s!) in review

Professor Andy Jones, Consultant in Respiratory Medicine and Cystic Fibrosis, Manchester Adult Cystic Fibrosis Centre

Close of meeting



Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 1:00am on Monday 21 November 2022. Late registrations will not be accepted. 

The agenda is subject to change at any time 

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenters and RSM discretion. 

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations. 

1 Wimpole Street venue hire

Venue hire

The RSM's venue space, 1 Wimpole Street is located in central London and offers event spaces for 2 to 300 people. The diverse range of services includes rooms for hybrid and live-streamed conferences, meetings and training or social events such as anniversary or birthday celebrations. 1 Wimpole Street also has a civil wedding licence.

Contact us today on 020 7290 2979.

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