About this event

  • Date and time Wed 8 May 2019 from 8:45am to 5:00pm
  • Location Salford University, Media City Campus
  • Organised by Nephrology

This high-quality meeting will bring experts from a wide variety of rare disease areas together to present the latest updates and developments in rare diseases.

The meeting will be of relevance to medical student, trainees and consultants as it provides a unique opportunity to keep up to date with latest clinical developments, opportunities and research being conducted and MDT and patient partnerships for these conditions.

Topics include: 

  • Expert overview of a number of rare diseases affecting the kidney 
  • Best medical management and potential treatments  
  • Latest research, developments and opportunities for future research using the RADAR network

Tickets

Standard pricing available until 07 May 2019.

Member

RSM Fellow RSM Associate RSM Trainee RSM Retired Fellow RSM Student
£39.00 £39.00 £39.00 £39.00 £20.00

Non - Member

AHP / Nurse / Midwife Trainee Consultant / GP Student
£65.00 £65.00 £65.00 £35.00

Agenda

View the programme

Registration, tea and coffee
Welcome and introduction

Dr Tina Chrysochou, Consultant Nephrologist and Honorary Lecturer, Salford Royal Hospitals NHS Foundation Trust

 

Session One

Dr Tina Chrysochou and Dr Ellie Asghari

Overview of RADAR, progress to date and vision for future

Dr Kate Bramham, Consultant Nephrologist and Senior Lecturer, King’s College Hospitals NHS Foundation Trust and Vice Chair, RADAR Group

From bench to bedside in auto-immune membranous nephropathy

Professor Paul Brenchley, Professor, University of Manchester and Director, Renal Research Labs, Manchester Institute of Nephrology and Transplantation, Manchester Royal Infirmary

GBM disorders: Alport to small print

Professor Neil Turner, Professor, Nephrology University of Edinburgh and Dean, Undergraduate Learning and Teaching, Centre for Inflammation Research, University of Edinburgh

Atypical HUS and C3 Glomerulopathy: Insights from the development of a national service

Professor David Kavanagh, Professor, Complement Therapeutics and Honorary Consultant Nephrologist, National Renal Complement Therapeutics Centre aHUS service, Newcastle upon Tyne

Tea and coffee break

Session Two

Dr Allyson Egan and Professor Bruce Hendry

Update on calciphylaxis – anecdote to clinical trials

Dr Smeeta Sinha, Clinical Director Renal Services, Greater Manchester North, Consultant Nephrologist and Honorary Senior Lecturer, Salford Royal NHS Foundation Trust

Novel markers and insights into focal segmental glomerulosclerosis: Implications for clinical practice

Speaker to be confirmed

 

The many faces of hepatocyte nuclear factor 1B kidney disease

Professor Adrian Woolfe, Professor, Paediatric Science, Division of Cell Matrix Biology and Regenerative Medicine, Faculty of Biology, Medicine and Health, University of Manchester, Honorary Consultant Nephrologist, Royal Manchester Children’s Hospital, and Honorary Professor, University College London

Lunch

Sponsored workshop: Optional workshop for delegates to attend during the lunch break

Session Three

Professor Bruce Hendry and Dr Allyson Egan

Fibromuscular dysplasia - rare or just under-diagnosed?

Dr Tina Chrysochou

Kidney disease and pregnancy

Dr Kate Bramham

UK Renal Research Network : Does it work?

Professor Philip Kalra, Professor, Nephrology, Salford Royal Hospital and University of Manchester, Chair, UK Kidney Research Consortium (UKKRC) and Academic Vice President, The Renal Association

Tea and coffee break

Session Four

Dr Kate Bramham and Dr Tina Chrysochou

 

Potential use of antisense therapeutics in ADPKD

Professor Bruce Hendry, Emeritus Professor of Medicine, King's College London

Fabry disease: Lessons from 124 cases

Dr Anna Reid, Cardiology Trainee, Wythenshawe Hospital

NIHR BioResource for translational research – recruitment, recall and access

Sofie Ashford, NIHR BioResource Senior Study Manager, University of Cambridge

Close of meeting

Location

Salford University, Media City Campus, University of Salford, Media City UK, Salford, M50 2HE, United Kingdom

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