About this event

  • Date and time Mon 5 Dec 2022 from 8:30am to 11:45am
  • Location Royal Society of Medicine
  • Organised by Medicine and Me

The rate of Alzheimer's disease in the UK is estimated at 1 in every 6 people above the age of 80, with its impact spreading even further amongst friends and family of the afflicted. 

During this event, we will showcase a diverse range of experiences from Alzheimer's Society research volunteers and dementia researchers to promote patient/public involvement and participation in dementia research. 

Attendees will learn the difference between involvement and participation in terms of clinical research and appreciate the importance of newly diagnosed patients being offered access to studies. 

Only through continued research into Alzheimer's will we be able to develop new treatment options for patients. During this event, we will share excellent examples of research opportunities so attendees can access/refer people themselves. 

Attendees will be able to: 

  • Understand the role of dementia research and the difference between participation and involvement 
  • Access research studies and refer others 
  • Appreciate the benefit of involvement and participation in research for people with dementia, their loved ones and healthcare 

 

We would like to thank our anonymous donor for their generous support enabling this platform for patient focused charities and free access to the Medicine and Me series.

Book to attend this event in person or virtually. To view the rates and agenda, please select your preference below. 

 

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Show Virtual / In Person rates

Agenda

View the programme

Registration, tea and coffee
Welcome and introduction

Session 1

Definition of patient and public involvement and participation in dementia research

Anna Smith, Research Engagement Manage, Alzheimer’s Society

Questions and answers

Ms Ketevan Alania, Doctoral Student, Dementia Research Institute, Imperial College London 

Non-invasive brain stimulation project led by Nir Grossman at the Dementia Research Institute

Ms Sophie Horrocks, Inclusive Human-Centred Designer, Helix Centre and UK Dementia Research Institute's Care Research & Technology Centre

Questions and answers
Tea and coffee break

Session 2

Dementia and continence

Dr Cathy Murphy, Principal Research Fellow, University of Southampton

Questions and answers
Accelerating dementia breakthroughs by filling the African brain gap

Dr Mahmoud Maina 

Questions and answers
Panel discussion
Closing remarks
Close of meeting
View the programme

Welcome and introduction

Session 1

Definition of patient and public involvement and participation in dementia research

Anna Smith, Research Engagement Manage, Alzheimer’s Society

Questions and answers
Non-invasive brain stimulation project led by Nir Grossman at the Dementia Research Institute

Sophie Horrocks, Inclusive Human-Centred Designer, Helix Centre and UK Dementia Research Institute's Care Research & Technology Centre

Questions and answers

Session 2

Dementia and continence

Dr Cathy Murphy, Principal Research Fellow, University of Southampton

Meeting the needs of black and African Caribbean people in dementia care

Dr Moïse Roche, Researcher, Alzheimer’s Society

Questions and answers
Panel discussion
Closing remarks
Close of meeting

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 1:00am on 4 December 2022. Late registrations will not be accepted. 

The agenda is subject to change at any time 

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenters and RSM discretion. 

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations. 

This event will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels. 

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