Professor Dominic fFytche
BSc MBBS MD MRCP MRCPsych, Professor of Visual Psychiatry, King’s College London
About this event
- Date and time Mon 14 Mar 2022 from 6:00pm to 7:30pm
- Location Online
- Organised by Medicine and Me
Jointly organised with Esme’s Umbrella, this webinar will discuss and explore what we know about Charles Bonnet Syndrome (CBS), the impact on children and their families, and what medical professionals can do to spot the signs and correctly refer or diagnose this patient group.
CBS causes a person whose vision has started to deteriorate to see things that aren't real (hallucinations). The hallucinations may be simple patterns, or detailed images of events, people or places, and can be nice or terrifying. The hallucinations are only visual and don't involve hearing things or any other sensations.
It's important to be aware that hallucinations associated with CBS are caused by failing eyesight. They are not caused by a mental health problem or dementia.
Experts Professor Mariya Moosajee, Professor of Molecular Ophthalmology, Institute of Ophthalmology, University College London and Honorary Consultant Ophthalmologist, Genetic Eye Disease, Moorfields Eye Hospital and Great Ormond Street Hospital, and Dr Lee Jones, Research Fellow, University College London and Bravo Victor, will highlight why knowledge of CBS is important and that it is not related to age and can happen to anyone.
You will understand why it is vital that ophthalmologists and optometrists explain CBS to every patient whose sight is deteriorating, and the importance of signposting patients for support and/or counselling from Esme’s Umbrella and other support organisations.
You will also hear from Professor Dominic fFytche BSc MBBS MD MRCP MRCPsych, Professor of Visual Psychiatry, King’s College London, Nina Chesworth, Holistic Therapist who lives with CBS, and Judith Potts, Founder of Esme's Umbrella.
CPD learning applied.
This webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place.
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About Medicine and Me
Medicine and Me meetings aim to provide an outline of current best practice, future updates of important conditions, and give a direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians, surgeons and indeed all healthcare professionals, continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.
We would like to thank our anonymous donor for their generous support enabling this platform for patient focused charities and free access to the Medicine and Me series.
Key speakers
Professor Mariya Moosajee
Professor of Molecular Ophthalmology, Institute of Ophthalmology, University College London and Honorary Consultant Ophthalmologist, Genetic Eye Disease, Moorfields Eye Hospital and Great Ormond Street Hospital
Dr Lee Jones
Research Fellow, University College London and Bravo Victor
Judith Potts
Founder of Esme's Umbrella
Agenda
View the programme
Welcome and introduction
Judith Potts, Founder of Esme's Umbrella
Charles Bonnet Syndrome: a clinical introduction
Professor Dominic ffytche, Professor of Visual Psychiatry, King’s College London
What I would like all healthcare professionals to understand
Nina Chesworth, Holistic Therapist
Charles Bonnet Syndrome is no respecter of age
Professor Mariya Moosajee, Professor of Molecular Ophthalmology, Institute of Ophthalmology, University College London and Honorary Consultant Ophthalmologist, Genetic Eye Disease, Moorfields Eye Hospital and Great Ormond Street Hospital and Dr Lee Jones, Research Fellow, University College London and Bravo Victor
Questions and answers
Chair: Helen Khan, Communications Lead, Moorfields Biomedical Research Centre
Closing remarks
Judith Potts
Location
Online
Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations.
Special rates for difficult times
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s weekly COVID-19 Series webinars remain free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic.
Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.
This webinar will be available for registered delegates 30 days after on Zoom. The link will be sent 24 hours after the webinar takes place.
This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.
Upcoming series from Medicine & Me
Jointly organised with ARDEnt, The COVID-19 impact on rare diseases series will cover all themes outlined in the Making The Unseen Seen report, from diagnostic delay in episode 1, to health and social care in episode 2, clinical trials and drug development in episode 3, and concluding with the UK Rare Diseases Framework and action plans in episode 4.
All webinars in this series are available for on-demand viewing. The recording of each episode will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place.
Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
This time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives of those living with rare conditions.
To remediate this, a large group of UK-based and cross-sector stakeholders, known as ARDEnt, assembled to ensure the capture and analysis of what was truly happening to the fragile rare disease infrastructure.
Jointly organised with ARDEnt, this webinar will examine how the diagnostic process in rare diseases was affected by the response to the COVID-19 pandemic.
Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions.
Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that will be felt long after COVID-19 restrictions are lifted.
Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease
Jointly organised with ARDEnt, this webinar will explore the impact of the pandemic response on UK clinical trials and drug development for rare diseases.
This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already fragile world of clinical development for rare diseases.
Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
Jointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework, published in January 2021.
The webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework in the UK.