Jointly organised with Fifth Sense, this webinar will hear from people living with a smell and/or taste disorder, healthcare professionals, and Fifth Sense staff who support and work with those people.
Pre Sars-COV2 (COVID-19), smell disorders were thought to affect approximately 3million people in the UK. This has increased significantly throughout 2020 and 2021. There are many causations, viruses are just one, and there are varied and limited medical treatments and interventions to support recovery. The physical challenges of living in a world without smell/taste are difficult to live with for those who experience it, and the social and psychological impact is huge – imagine never being able to smell your children or fully appreciate the flavour of your favourite dish.
In this webinar, we will discuss the approaches to diagnosis, active treatment and symptom management of smell and taste disorders from ENT and neurological perspectives, the importance of nutrition, and the psychological impact it has. We will hear from patients and what they want their medical professionals to understand about their condition.
Topics to be discussed during this webinar include:
CPD learning applied.
This webinar is available for on-demand viewing. The webinar recording will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place.
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Medicine and Me meetings aim to provide an outline of current best practice, future updates of important conditions, and give a direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians, surgeons and indeed all healthcare professionals, continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.
We would like to thank our anonymous donor for their generous support enabling this platform for patient focused charities and free access to the Medicine and Me series.
Duncan Boak, Founder and Chair, Fifth Sense
Professor Carl Philpott, Director of Research and Medical Affairs, Fifth Sense, Professor of Rhinology and Olfactology, Norwich Medical School, University of East Anglia, Honorary Consultant ENT Surgeon and Rhinologist, James Paget University Hospital, Great Yarmouth
Sian Riley, Nutrition and Dietetics, Red Pepper Nutrition
Lucy Thomas, Patient, Post COVID anosmia and parosmia
Dr Rachel Herz, Adjunct Professor, Department of Psychiatry and Human Behaviour, Brown University, Rhode Island, Part-time Faculty, Department of Psychology and Neuroscience, Boston College, Massachusetts
Debs Davies, Patient, Congenital anosmia and Life Coach
Dr Richard Rees, Clinical Research Associate, Institute of Neurology, University College London
Including a discussion on how to improve patient outcomes
Chair: Professor Carl Philpott
Panellists:
Online
Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations.
Special rates for difficult times
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s weekly COVID-19 Series webinars remain free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic.
Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.
This webinar will be available for registered delegates 30 days after on Zoom. The link will be sent 24 hours after the webinar takes place.
This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.
Jointly organised with ARDEnt, The COVID-19 impact on rare diseases series will cover all themes outlined in the Making The Unseen Seen report, from diagnostic delay in episode 1, to health and social care in episode 2, clinical trials and drug development in episode 3, and concluding with the UK Rare Diseases Framework and action plans in episode 4.
All webinars in this series are available for on-demand viewing. The recording of each episode will be available for registered delegates up to 30 days after the live webinar broadcast via Zoom. The link will be sent 24 hours after the webinar takes place.
This time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives of those living with rare conditions.
To remediate this, a large group of UK-based and cross-sector stakeholders, known as ARDEnt, assembled to ensure the capture and analysis of what was truly happening to the fragile rare disease infrastructure.
Jointly organised with ARDEnt, this webinar will examine how the diagnostic process in rare diseases was affected by the response to the COVID-19 pandemic.
During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions.
Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that will be felt long after COVID-19 restrictions are lifted.
Jointly organised with ARDEnt, this webinar will explore the impact of the pandemic response on UK clinical trials and drug development for rare diseases.
This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already fragile world of clinical development for rare diseases.
Jointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework, published in January 2021.
The webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework in the UK.
