About this event

  • Date and time Thu 7 Jul 2022 from 1:30pm to 5:15pm
  • Location Royal Society of Medicine
  • Organised by Medicine and Me, Adult Cerebral Palsy Hub

This event is an opportunity to understand cerebral palsy as a lifelong condition, including the consequences of aging and the associated co-morbidities. It will consider the challenges faced by the 130,000 community of adults with CP, the lack of coordinated care, and how this impacts them achieving full-life participation. It will also explore innovative solutions for a better future, using insights from professionals and patients living and working with the condition.

“You become 18 and then [all support] stops. But your Cerebral Palsy doesn’t disappear when you’re 18, but the services seem to stop.”
Barriers for adults with Cerebral Palsy on achieving full life participation: access to healthcare services and progressing at work, a report of the All-Party Parliamentary Group on Cerebral Palsy, March 2022

During this meeting you will:

  • Be informed of the latest research regarding adults with cerebral palsy and co-morbidities, ageing well with a disability, and the patient experience
  • Gain insight into specialist centre innovations in the UK and the international landscape
  • Learn the NICE guidelines and parliamentary recommendations around the APPG on cerebral palsy
  • Discuss what optimum health care and support could and should look like for this community

This is a unique chance to connect and engage with the adult cerebral palsy community. Delegates will have the opportunity to hear some personal and professional experiences of living and working with cerebral palsy, and understand how best to manage this condition. Topics include the consequences of aging and associated co-morbidities, innovative solutions, APPG report recommendations, and more.

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Show Virtual / In Person rates

Tickets (In Person)

Standard pricing available until 06 July 2022.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£0.00 £0.00 £0.00 £0.00 £0.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Trainee Student Patient / Carer / Relative Non Healthcare Professional
£0.00 £0.00 £0.00 £0.00 £0.00 £0.00

Tickets (Virtual)

Standard pricing available until 06 July 2022.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£0.00 £0.00 £0.00 £0.00 £0.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Trainee Student Patient / Carer / Relative Non Healthcare Professional
£0.00 £0.00 £0.00 £0.00 £0.00 £0.00

Agenda

View the programme

Registration, tea and coffee

Welcome and introduction
My cerebral palsy life
What is cerebral palsy - adult care medication and challenges

Dr Mark Peterson, Associate Professor, Physical Medicine and Rehabilitation, University of Michigan

Ageing well with a disability
Patient experiences commonality and differences

Dr Kirsty Colquhoun, Consultant Geriatrician, Glasgow Royal Infirmary, Stobhill Hospital and The Beatson West of Scotland Cancer Hospital and Secretary, British Geriatrics Society Oncogeriatric Specialist Interest Group

Panel discussion
Comfort break

Welcome back
Future innovations – better future look like

Elisabet Rodby Bousquet, Associate Professor, Lund University and National Coordinator, CPUP Centre for Clinical Research Västerås, Uppsala University, Liz Keenan, Clinical Nurse Specialist, The National Hospital for Neurology and Neurosurgery and Mr Michail Kokkinakis, Consultant Paediatric Orthopaedic Surgeon, Evelina London Children’s Hospital and Honorary Senior Lecturer, King’s College London

Panel discussion
Summary of All-Party Parliamentary Group report and recommendations

Mr Paul Maynard MP, Chair, All Party Parliamentary Group on Cerebral Palsy

Adult Cerebral Palsy Hub - plans for next 12-18-24 months question and answer session
Vote of thanks
Close of meeting

Drinks reception

View the programme

Welcome and introduction
My cerebral palsy life
What is cerebral palsy - adult care medication and challenges

Dr Mark Peterson, Associate Professor, Physical Medicine and Rehabilitation, University of Michigan

Ageing well with a disability
Patient experiences commonality and differences

Dr Kirsty Colquhoun, Consultant Geriatrician, Glasgow Royal Infirmary, Stobhill Hospital and The Beatson West of Scotland Cancer Hospital and Secretary, British Geriatrics Society Oncogeriatric Specialist Interest Group

Panel discussion
Comfort break

Welcome back
Future innovations – better future look like

Elisabet Rodby Bousquet, Associate Professor, Lund University and National Coordinator, CPUP Centre for Clinical Research Västerås, Uppsala University, Liz Keenan, Clinical Nurse Specialist, The National Hospital for Neurology and Neurosurgery and Mr Michail Kokkinakis, Consultant Paediatric Orthopaedic Surgeon, Evelina London Children’s Hospital and Honorary Senior Lecturer, King’s College London

Panel discussion
Summary of All-Party Parliamentary Group report and recommendations

Mr Paul Maynard MP, Chair, All Party Parliamentary Group on Cerebral Palsy

Adult Cerebral Palsy Hub - plans for next 12-18-24 months question and answer session
Vote of thanks
Close of meeting

Drinks reception

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Disclaimer: All views expressed at this event are of the speakers themselves and not of the RSM nor the speaker's organisations.

Registration for this event will close at 1:00am on 6 July 2022Late registrations will not be accepted.

This event will be recorded and stored by the Royal Society of Medicine and may be  distributed  in future on various internet channels. 

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