About this event

  • Date and time Mon 6 Jul 2020 from 10:00am to 3:30pm
  • Location Live stream - online
  • Organised by Medicine and Me

Please note: This is a live stream. 

Jointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease.

Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary Fibrosis (IPF). Idiopathic means it has no known cause. IPF normally affects people over 50 and is slightly more common in men than women. There are limited treatments and there is no cure. Life expectancy can be between three to five years following diagnosis, and around 6,000 people die from it every year in the UK.

Learn more about current approaches to diagnosis, treatment and management of IPF from the perspective of patients, their carers and clinicians, as well as gaining an insight into the psychological and emotional wellbeing of those living with IPF. We'll also explore the cutting edge research into improving outcomes and palliation, as we consider areas of inquiry likely to deliver step changes in treatments. 

 

What will you learn?

By attending this meeting, you will have the opportunity to:

  • Understand the most effective approaches to the diagnosis of IPF and the contribution of high-resolution imaging
  • Know about the pharmacology and use of current anti-fibrotic drugs and the underlying biology that may lead to new approaches to treatments
  • Understand the development of biomarkers, breath markers and other approaches to determining who is likely to respond to treatments
  • Know from patients’ perspectives about the importance of palliative options and support for symptoms including breathlessness and mental health concerns
  • Consider inequalities in access to management options, for example, care by specialist nurses
  • Consider likely avenues for ”step changes” in treating IPF

 

About Medicine and Me

Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and to give direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians and surgeons and indeed all healthcare professionals continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.

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We would like to thank our sponsors(s):

Galecto Biotech AB

Please note that none of the companies listed have had any influence or involvement over the agenda, content or organisation of this meeting.

Agenda

View the programme

Live stream broadcast begins
Welcome and introduction

Dr Fiona Moss, Dean, Royal Society of Medicine

Introduction to the day

Steve Jones, Chair of Trustees, Action for Pulmonary Fibrosis

Living with Idiopathic Pulmonary Fibrosis – patients’ perspectives

Diagnostic journeys - Mr Howard Almond, Company Director, IP Import Limited

Anti-fibrotic drugs and daily life - Mr Ronald Fish, Secretary, Papworth Hospital Pulmonary Fibrosis Support Group

Idiopathic Pulmonary Fibrosis: what is it, who gets it and why?

Dr Simon Hart, Reader in Respiratory Medicine, Castle Hill Hospital

Speeding up the diagnostic journey: Step changes in diagnosis

Dr Simon Walsh, Consultant Thoracic Radiologist and National Institute for Health Research Clinician Scientist, National Heart and Lung Institute, Imperial College, London and Dr Simon Hart

Panel discussion

Patients, Dr Simon Hart and Dr Simon Walsh

Break from live steam
Current and future treatments for Idiopathic Pulmonary Fibrosis

Dr Helen Parfrey, Consultant Respiratory Physician, Royal Papworth Hospital

Discussion with Dr Helen Parfrey
Life with Pulmonary fibrosis: What helps?

Ms Maxine Flewett, Papworth Hospital Pulmonary Fibrosis Support Group, Carer

Dr Melissa Wickremasinghe, Consultant Respiratory Physician, St Mary’s Hospital, Imperial College Health care Trust

Dr Anne-Marie Russell PhD RN, Senior Clinical Research Fellow, Honorary Idiopathic Pulmonary Fibrosis Nurse Consultant, Imperial College Healthcare NHS Trust

Panel discussion

Ms Maxine Flewett, Dr Anne-Marie Russell, Dr Melissa Wickremasinghe

Panel discussion: Looking forwards together: Step changes in treatments, what are the priorities?

Dr Helen Parfrey, Dr Simon Hart, Dr Melissa Wickremasinghe, Dr Helen Parfrey, Dr Anne-Marie Russell, patients

Closing comments
Close of meeting and end of live stream

Location

Live stream - online

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