About this event

  • Date and time Fri 13 Mar 2020 from 10:00am to 3:30pm
  • Location Royal Society of Medicine
  • Organised by Medicine and Me, Action for Pulmonary Fibrosis

Jointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease.

Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary Fibrosis (IPF). Idiopathic means it has no known cause. IPF normally affects people over 50 and is slightly more common in men than women. There are limited treatments and there is no cure. Life expectancy can be between three to five years following diagnosis, and around 6,000 people die from it every year in the UK.

Learn more about current approaches to diagnosis, treatment and management of IPF from the perspective of patients, their carers and clinicians, as well as gaining an insight into the psychological and emotional wellbeing of those living with IPF. We'll also explore the cutting edge research into improving outcomes and palliation, as we consider areas of inquiry likely to deliver step changes in treatments. 

 

What will you learn?

By attending this meeting, you will have the opportunity to:

  • Understand the most effective approaches to the diagnosis of IPF and the contribution of high-resolution imaging
  • Know about the pharmacology and use of current anti-fibrotic drugs and the underlying biology that may lead to new approaches to treatments
  • Understand the development of biomarkers, breath markers and other approaches to determining who is likely to respond to treatments
  • Know from patients’ perspectives about the importance of palliative options and support for symptoms including breathlessness and mental health concerns
  • Consider inequalities in access to management options, for example, care by specialist nurses
  • Consider likely avenues for ”step changes” in treating IPF

 

About Medicine and Me

Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and to give direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians and surgeons and indeed all healthcare professionals continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.

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We would like to thank our sponsors(s):

Galecto Biotech AB

Please note that none of the companies listed have had any influence or involvement over the agenda, content or organisation of this meeting.

Tickets

Standard pricing available until 12 March 2020.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Student RSM Trainee
£45.00 £24.00 £20.00 £0.00 £0.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Student Trainee Patient / Carer / Relative
£75.00 £40.00 £0.00 £0.00 £0.00

Agenda

View the programme

Registration, tea and coffee
Welcome and introduction

Dr Fiona Moss, Dean, Royal Society of Medicine

Introduction to the day

Steve Jones, Chair of Trustees, Action for Pulmonary Fibrosis

Living with Idiopathic Pulmonary Fibrosis – patients’ perspectives

Diagnostic journeys - Howard Almond, Exeter Pulmonary Fibrosis Group and APF trustee

Anti-fibrotic drugs and daily life - Ron Fish, Papworth Hospital PF Support Group

Idiopathic Pulmonary Fibrosis: what is it, who gets it and why?

Dr Simon Hart, PhD FRCPE, Reader in Respiratory Medicine, Hull York Medical School

Speeding up the diagnostic journey: Step changes in diagnosis

Dr Simon Walsh MD FRCR Consultant Radiologist, National Heart and Lung Institute, Imperial College London
Dr Simon Hart, PhD FRCPE, Reader in Respiratory Medicine, Hull York Medical School

Panel discussion

Patients, Dr Simon Hart and Dr Simon Walsh

Lunch
Current and future treatments for Idiopathic Pulmonary Fibrosis

Dr Helen Parfrey PhD, FRCP Consultant Physician, Cambridge Interstitial Lung Diseases Unit

Discussion with Dr Helen Parfrey
Life with Pulmonary fibrosis: What helps?

Ms Maxine Flewett, Papworth Hospital Pulmonary Fibrosis Support Group, carer

Dr Melissa Wickremasinghe, PhD MRCP, Consultant Respiratory Physician

Dr Anne-Marie Russell PhD RN, Senior Clinical Research Fellow, Honorary Idiopathic Pulmonary Fibrosis Nurse Consultant, Imperial College Healthcare NHS Trust

Panel discussion

Ms Maxine Flewett, Dr Anne-Marie Russell, Dr Melissa Wickremasinghe

Panel discussion: Looking forwards together: Step changes in treatments, what are the priorities?

Dr Helen Parfrey, Dr Simon Hart, Dr Melissa Wickremasinghe, Dr Helen Parfrey, Dr Anne-Marie Russell, patients

Closing comments

Steve Jones

Close of meeting, tea and coffee

Sponsors

Galecto Biotech AB

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

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