About this event

  • Date and time Thu 23 Apr 2020 from 12:30pm to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Medicine and Me, Nerve Tumours UK

Jointly organised with Nerve Tumours UK, this meeting will give you an understanding of what it is like to live with nerve tumours.  

Hear from people living with nerve tumours and clinicians as we review and discuss current approaches to diagnosis and treatment, in the light of advances in molecular biology and imaging.

 

What will you learn?

By attending this meeting, you will have the opportunity to:

  • Understand the epidemiology, biology and genetics of Nerve Tumours - neurofibromatosis I (NF1) and neurofibromatosis 2 (NF2)
  • Appreciate the impact of living with NF1 and NF2 nerve tumours first-hand from patients 
  • Learn about the recognition of malignant transformation (NF1)
  • Discover the management of NF2 nerve tumours
  • Explore today’s treatments
  • Understand the management and support for people with nerve tumours

 

About Medicine and Me

Medicine and Me meetings aim to provide an outline of current best practice and future updates of important conditions and to give direct voice to patients and their carers and enable them to discuss their concerns and reflections on the impact of diagnosis, investigation and management.

Physicians and surgeons and indeed all healthcare professionals continue to learn from and be inspired to greater efforts to improve care by hearing directly from patients.

 

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Tickets

Early bird pricing available until 25 March 2020.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£36.00 £18.00 £15.00 £0.00 £0.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Trainee Student Patient / Carer / Relative
£60.00 £30.00 £0.00 £0.00 £0.00

Agenda

View the programme here

Registration
Welcome and introduction

Professor Rosalie Ferner, Guy’s and St Thomas’ NHS Foundation Trust, Professor Gareth Evans, Manchester University NHS Foundation Trust,  Dr Dorothy Joe, SpR Neurology, Guy’s and St Thomas’ NHS Foundation Trust and Mr Michael Fry, Chair, Nerve Tumours UK

Session one: Symptoms and diagnostic journeys and parallel symptoms

Epidemiology, biology and genetics of nerve tumours (NF1 and NF2)

Professor Gareth Evans

Session two: Diagnosis and clinical manifestations - parallel sessions

NF1: Benign and malignant nerve sheath tumours in NF1

Professor Rosalie Ferner

NF2: Vestibular schwannoma and meningioma

Professor Gareth Evans and Raji Anup CNS Manchester University NHS Foundation Trust

NF1: Impact of living with nerve tumours: Birth to old age a patient and a parent’s perspective

Richard Goode and Alex Hetherington

NF2: Impact of living with nerve tumours: Birth to old age a patient perspective

Emily Owen

NF1: Discussion
NF2: Discussion
Tea and coffee break

Session three: Management of nerve tumours - parallel sessions

NF1: Surgical treatment options for plexiform

Mr Simon Eccles, Plastic Surgeon, Chelsea and Westminster Hospital NHS Foundation Trust

NF2: Management of NF2 related tumours

Mr Nick Thomas, Kings College Hospital NHS Foundation Trust

NF1: Medical treatment options: Use of selumetinib and pain relief

Dr Karine Lascelles, Paediatric Neurologist, Guys and St Thomas’ NHS Foundation Trust London and Dr Grace Vassallo, Paediatric Neurologist, Manchester University NHS Foundation Trust

NF1 and NF2 Joint session: Management of symptoms
  • Mental health: Anxiety and depression
  • Pain
  • Appearance
  • NF specific challenges to delivering therapy
  • Challenges for the care

Dr Alastair Santhouse, Psychiatrist, South London and the Maudsley,
Dr Susie Henley, Psychologist, Guys and St Thomas’ NHS Foundation Trust London,
Mary Thomas, Clinical Nurse Specialist Guys and St Thomas’ NHS Foundation Trust London and 
Judith Eelloo, Clinical Nurse Specialist, Manchester University NHS Foundation Trust

Panel discussion

Chairs: Professor Rosalie Ferner, Professor Gareth Evans and Dr Dorothy Joe

Close of meeting

A drinks reception will follow the meeting, which all attendees are invited to

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

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Medicine and Me: Living with pulmonary fibrosis

Jointly organised with Action on Pulmonary Fibrosis, this afternoon meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease.  

  • Location Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom
Book Book
MMN04 Promo
CPD

Medicine and Me: Living with age related macular degeneration

Jointly organised with Action Against Age-related Macular Degeneration (AAAMD) this meeting will explore what it is like to live with age-related macular degeneration (AMD) from people living with the condition.  

  • Location Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom
Book Book
Networking with exhibition stands

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