About this event

  • Date and time Wed 21 Feb 2024 from 9:00am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Medical Genetics

Join this distinctive meeting that brings together stakeholders from across all sectors and rare diseases in order to teach and inform those who don’t yet know much about rare disease.

It's important to hear the patient voice, participants will gain first hand knowledge about the lived experience with rare disease from our remarkable speakers which include patients and advocates. 

The primary aim of this meeting is to inform doctors that rare diseases are collectively common and relevant to every medical career. Very different rare diseases face similar challenges, including navigating healthcare which can be alleviated by a medical profession that understands what living with a rare disease means to a patient and their larger community.

The focal point for this year’s event will be communication and inclusivity in rare disease.

By attending this meeting, you will

  • Know that rare diseases are collectively common, affecting approximately 3.5 million people in the UK.
  • Appreciate the common challenges that people with rare disease face in their journey to diagnosis and beyond. 
  • Recognise how rare disease can uniquely impact a patient and family’s mental wellbeing. 
  • Value the lived experience that expert patients can share with you in order to improve their care.  
  • Promote the work of M4RD and the Medical Genetics Section.


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Show Virtual / In Person rates

Tickets (In Person)

Standard pricing available until 20 February 2024.


RSM Fellow RSM Student RSM Associate RSM Retired Fellow RSM Trainee
£10.00 £10.00 £10.00 £10.00 £10.00

Non - Member

AHP / Nurse / Midwife Consultant / GP / SAS Doctors Student Trainee
£15.00 £15.00 £15.00 £15.00

Tickets (Virtual)

Standard pricing available until 21 February 2024.


RSM Fellow RSM Associate RSM Retired Fellow RSM Student RSM Trainee
£0.00 £0.00 £0.00 £0.00 £0.00

Non - Member

AHP / Nurse / Midwife Consultant / GP / SAS Doctors Student Trainee
£0.00 £0.00 £0.00 £0.00


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom


Registration for this event will close at 1:00am on Tuesday 20 February 2023. Late registrations will not be accepted. 
The agenda is subject to change at any time 
If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion. 
All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations. 
This event will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.