About this event

  • Date and time Fri 17 Jun 2022 from 9:00am to 5:00pm
  • Location Online
  • Organised by Medical Genetics

This is a live stream. To attend this event in person please click here.

Join us at this live stream which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. Experts in their field will present a series of talks that will inform delegates about practical guides for the assessment and management of this condition and will explore how community care can make a difference. 

Hypermobility spectrum disorder and hypermobile Ehlers-Danlos syndrome (hEDS) are often ill-understood and inadequately managed which can lead to more complications for the patient. 

This series of talks will provide a detailed understanding of the multisystem nature of the condition, which will enable general practitioners and specialists to better assess problems and develop practical advice and management plans for patients.

Learning objectives:

  • Understand the many varied symptoms and signs of hypermobile patients 

  • Increase knowledge about the different methods of treatment

  • Provide practical suggestions for care in the community

  • When to consider genetic testing in hypermobility syndrome

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Tickets

Standard pricing available until 17 June 2022.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£36.00 £27.00 £27.00 £27.00 £18.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Non Healthcare Professional Trainee Student
£66.00 £50.00 £50.00 £50.00 £33.00

Agenda

View the programme

Hypermobility Spectrum Disorder and Hypermobility Ehlers - Danlos Syndrome

Chair: Dr Gayatri Mittal, Consultant Rheumatologist and Clinical Lead, Royal National Orthopaedic Hospital NHS Trust

Welcome and introduction

Dr Anand Saggar, Senior Consultant in Clinical Genetics, St George's University Hospitals NHS Foundation Trust

Hypermobility: A window into a multisystem disorder

Professor Alan Hakim, Consultant Rheumatologist, The Wellington Hospital and Chief Medical Officer, The Ehlers-Danlos Society

Living with hypermobility: Role of the patient organisation

Professor Lara Bloom, Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration, Penn State College of Medicine and CEO of The Ehlers-Danlos Society

Panel discussion
Comfort break
Hypermobility and autoimmunity

Professor Alan Hakim 

Neurodiversity and hypermobility

Dr James Kustow, Consultant Psychiatrist and Medical Director, The Groves 

Physiotherapy: Advice to give a patient

Dr Jane Simmonds, Co-deputy Director of Education and MSc Advanced Paediatric Physiotherapist 

Panel discussion
Lunch

A practical guide to management for clinicians

Chair: Dr Anand Saggar 

Introduction
Postural Tachycardia Syndrome (PoTS): A guide to treatment

Dr Nick Gall, Guthrie Clinic, King's College Hospital NHS Foundation Trust

Bowel dysfunction in Hypermobile Ehlers-Danlos Syndrome (eHDS) and Hypermobility Spectrum Disorder (HSD): What the non-specialists can do to help

Professor Qasim Aziz, Consultant Gastroenterologist

Panel discussion
Comfort break
Urogynecology and hEDS - recognition and management

Professor Vik Khullar, Consultant Gynaecologist and Urogynecologist, St. Mary's Hospital, Imperial College Healthcare NHS Trust

The place of genetic testing in hypermobility syndromes

Dr Anand Saggar

Panel discussion
Close of meeting

Location

Online

Disclaimer: All views expressed in this live stream are of the speakers themselves and not of the RSM nor the speaker's organisations.

Registration for this live stream will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

This live stream will be available for registered delegates 60 days after on Zoom. The link will be sent 24 hours after the webinar takes place. 

This live stream will be recorded and stored by the Royal Society of Medicine and may be  distributed  in future on various internet channels.

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