About this event

  • Date and time Wed 9 Feb 2022 from 6:00pm to 8:00pm
  • Location Online
  • Organised by Medical Genetics, Medics 4 Rare Diseases

Medics 4 Rare Diseases and the RSM bring together a faculty of top speakers to explore how rare diseases are relevant in everyday clinical medicine.

At this unique annual online meeting, we will hear from patients and advocates as well as doctors in order to inclusively hear from all perspectives of the rare disease specialty. This meeting is the only one of its kind specifically targeting medical professionals to teach them about the broad concepts of rare diseases and offering pragmatic advice about how to diagnose and manage them in everyday medicine.

Very different rare diseases face similar challenges including navigating the world of healthcare. 
Around 3.5 million people in the UK live with a rare disease - making rare diseases collectively common. The rare disease and genomic field is changing rapidly and continuing medical education is desperately needed in order to make full use of new innovations and therapies. 

Learning objectives:

  • Understand that rare diseases are collectively common
  • Appreciate the common challenges that people with rare diseases face in the journey to diagnosis and beyond
  • Value the lived experience that expert patients can share with you in order to improve their care
  • Promote the work of M4RD and the role of the Medical Genetics Section

Join in the conversation online using #M4RD2022
Follow us on Twitter: @RoySocMed and @M4RareDiseases

 

Tickets

Standard pricing available until 09 February 2022.

Member

RSM Fellow RSM Associate RSM Retired Fellow RSM Trainee RSM Student
£0.00 £0.00 £0.00 £0.00 £0.00

Non - Member

Consultant / GP AHP / Nurse / Midwife Non Healthcare Professional Trainee Student
£0.00 £0.00 £0.00 £0.00 £0.00

Agenda

View the programme

Welcome and introduction

Dr Lucy McKay, Chief Executive Officer, Medics4RareDiseases

Rare disease 101

Dr Lucy McKay

Patient advocate

To be confirmed

Development of genomics

To be confirmed

Narrative medicine and patient advocacy

To be confirmed

UK rare disease framework

To be confirmed 

Student voice 2021 winner

To be confirmed 

Close of meeting

Location

Online

All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations. 

Special rates for difficult times 
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s weekly COVID-19 Series webinars remain free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic.

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.  

Webinar recordings will be available for registered delegates up to 60 days after the live webinar, via Zoom. The link will be sent 24 hours after the webinar takes place. 

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