About this event

  • Date and time Fri 17 Jun 2022 from 8:30am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Medical Genetics

Join us at this event which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. Experts in their field will present a series of talks that will inform delegates about practical guides for the assessment and management of this condition and will explore how community care can make a difference. 

Hypermobility spectrum disorder and hypermobile Ehlers-Danlos syndrome (hEDS) are often ill-understood and inadequately managed which can lead to more complications for the patient. 

Can't make it to London? Click here to attend the live stream of this event.

This series of talks will provide a detailed understanding of the multisystem nature of the condition, which will enable general practitioners and specialists to better assess problems and develop practical advice and management plans for patients.

Learning objectives:

  • Understand the many varied symptoms and signs of hypermobile patients 

  • Increase knowledge about the different methods of treatment

  • Provide practical suggestions for care in the community

  • When to consider genetic testing in hypermobility syndromes

A CPD certificate with 6 CPD creditwill be issued to those joining the event live as well as those who watch the recording afterwards. Certificates will be issued 7 days after the event to those who watch it live and after 60 days for those that watch the recording. 

A CPD certificate with 6 CPD creditwill be issued 7 days after the event.  

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View the programme

Hypermobility Spectrum Disorder (HSD) and Hypermobility Ehlers - Danlos Syndrome (eHDS)

Chair: Dr Gayatri Mittal, Consultant Rheumatologist and Clinical Lead, Royal National Orthopaedic Hospital NHS Trust

Registration, tea and coffee
Welcome and introduction

Dr Anand Saggar, Senior Consultant in Clinical Genetics, St George's University Hospitals NHS Foundation Trust

Hypermobility: A window into a multisystem disorder

Professor Alan Hakim, Consultant Rheumatologist, The Wellington Hospital and Chief Medical Officer, The Ehlers-Danlos Society

Living with EDS and HSD: Role of the patient organisation

Professor Lara Bloom, Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration, Penn State College of Medicine and CEO of The Ehlers-Danlos Society

Panel discussion
Tea and coffee break
Hypermobility and autoimmunity

Professor Alan Hakim 

An overview of the intriguing relationship between hypermobility and ADHD (with insights relevant to other mental disorder)

Dr James Kustow, Consultant Psychiatrist and Adult ADHD Specialist, Director of Education of UK Adult ADHD Network (UKAAN) and Medical Director of The Grove Practice

Physiotherapy: Advice to give a patient

Dr Jane Simmonds, Co-deputy Director of Education and MSc Advanced Paediatric Physiotherapist 

Panel discussion

A practical guide to management for clinicians

Chair: Dr Anand Saggar 

Postural Tachycardia Syndrome (PoTS): A guide to treatment

Dr Nick Gall, Guthrie Clinic, King's College Hospital NHS Foundation Trust

Chair: Professor Piers Daubeney, Consultant Paediatric and Fetal Cardiologist, Royal Brompton and Harefield Hospitals NHS Trust

Bowel dysfunction in Hypermobile Ehlers-Danlos Syndrome (eHDS) and Hypermobility Spectrum Disorder (HSD): What the non-specialists can do to help

Professor Qasim Aziz, Consultant Gastroenterologist

Panel discussion
Tea and coffee break
Urogynecology and hEDS - recognition and management

Professor Vik Khullar, Consultant Gynaecologist and Urogynecologist, St. Mary's Hospital, Imperial College Healthcare NHS Trust

The place of genetic testing in hypermobility syndromes

Dr Anand Saggar

Panel discussion
Close of meeting


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 01:00am on Thursday 16 June 2022. Late registrations will not be accepted.

The agenda is subject to change at any time. 

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations. 

We are only able to share presentations that we have received permission to share. This is at the presenter and the RSM’s discretion. 

This event will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels. 

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