About this event

  • Date and time Mon 22 Jun 2020 from 12:30pm to 1:35pm
  • Location Online
  • Organised by Medical Genetics

This webinar brings together experts from different parts of the rare disease community: primary care, advocacy and medical genetics services.

Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential beneficial changes to services as a result of the pandemic - most acutely felt by people with complex diseases who depend on an intricate framework of support.

Objectives of this event are:

  • To understand the direct impact of the pandemic on rare diseases, e.g. shielding on patients and families.
  • To understand the indirect impact of the pandemic on rare disease care provision and access to services.

A certificate of attendance and CPD certificate with 1 CPD credit will be issued to those joining the webinar live. 

Join in the conversation online using #RSMLive 
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This webinar is supported by Bristol Myers Squibb in the form of an educational grant. Please note that the scientific programme and content has not been influenced in any way by the sponsor. 

The Royal Society of Medicine needs your support 
The RSM is offering this webinar at no charge to delegates, in order to help healthcare professionals to easily access COVID-19 related education material & resources during the pandemic. However, we are asking people to support the RSM in these unprecedented times. Now more than everas a charity we need your help to continue our work and mission in advancing healthcare through innovation and education. Please consider making a donation  for joining this webinar. Thank you for your generosity. 

Key speakers

Ms Lindsay Weaver

CEO of Metabolic Support UK.

Dr Will Evans

Clinical practice GP/academic GP, University of Nottingham & Chair of NP-UK.

Dr Elizabeth Forsythe

Specialist Registrar in Clinical Genetics at Great Ormond Street Hospital.

Dr Lara Menzies

Clinical Genetics, Great Ormond Street Hospital.


View the programme

Welcome and introduction
The impact of COVID-19 from the patient perspective

Ms Lindsay Weaver, Chief Executive Officer, Metabolic Support UK

The impact of COVID- 19 from a primary care perspective

Dr Will Evans, Clinical Practice General Practitioner, Academic General Practitioner, University of Nottingham and Chair, Niemann-Pick UK

The impact of COVID-19 on rare disease services

Dr Elizabeth Forsythe, Specialist Registrar in Clinical Genetics, Great Ormond Street Hospital and Dr Lara Menzies, Clinical Genetics,Great Ormond Street Hospital

Panel discussion
Close of meeting




Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM.

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels. 

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