About this event

  • Date and time Tue 17 Nov 2020 from 10:00am to 4:15pm
  • Location Online
  • Organised by Intellectual Disability

A quarter of people with intellectual disability have epilepsy and a third of people with epilepsy have intellectual disability. In spite of such a significant overlap, the two conditions are rarely managed holistically. 

This vanguard meeting brings together experts from different medical specialties to highlight the current gaps in knowledge about people with both intellectual disability and epilepsy, and to learn about the potential solutions, including the launch of a good practice guidance, Step Together.

Join us to discuss the toxic mix of lack of knowledge and protocols and problem awareness, which is contributing to high levels of mortality, morbidity and poor social outcomes in this vulnerable population. 

During this session, participants can expect to:

  • Know the diagnostic and treatment challenges epilepsy poses to people with intellectual disability
  • Know the current concerns for people with intellectual disability and epilepsy and their families
  • Demonstrate what best practice looks for people with Intellectual Disability and epilepsy using 'Step Together'

Join in the conversation online using #RSMLive 
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Tickets

Standard pricing available until 17 November 2020.

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

Member

RSM Member RSM Trainee RSM Student
£40.00 £25.00 £25.00

Non - Member

Non - Member Trainee Student AHP / Nurse / Midwife
£65.00 £35.00 £35.00 £35.00

Key speakers

Professor Arjune Sen

Consultant Neurologist and BRC Senior Research Fellow, NICE Chair for Epilepsy Update 2022

Professor Josemir Sander

Professor of Neurology and Clinical  Epilepsy, Department of Clinical and Experimental Epilepsy, Institute of Neurology of University College London

Professor Matthew Walker

Chair, ILAE (International League against Epilepsy), British Chapter

Dr Rohit Shankar MBE

Consultant Neuropsychiatrist, Cornwall Partnership NHS Foundation Trust, Senior Clinical Lecturer Exeter Medical School and Project Lead- Step Together

Agenda

View programme

Delegates will be sent two Zoom links on the day on the webinar. One for session one and another for session two. At the end of session one, there will be a 50 minute break. Delegates will then need to log into session two with the second link provided.

Session one: Are we failing people with epilepsy and intellectual disability?

Welcome and introduction

Professor Regi Alexander, President, Intellectual Disability Forum, Royal Society of Medicine

Epilepsy in people with intellectual disability – an overview

Professor Josemir Sander, Professor of Neurology and Clinical  Epilepsy, Department of Clinical and Experimental Epilepsy, Institute of Neurology of University College London

Learning from mistakes

Dr Ken Courtenay, Chair, Faculty of Psychiatry of Intellectual Disability, Royal College of Psychiatrists 

The view from the other side – challenges for a neurologist treating a person with intellectual disability

Professor Arjune Sen, Consultant Neurologist and BRC Senior Research Fellow, NICE Chair for Epilepsy Update 2022

Panel discussion

Chair: Dr Ashok Roy OBE, Co-Chair, Learning Disability Professional Senate and Clinical Advisor, Health Education England

End of session one and break

Please join session two at 1 PM using the second Zoom link provided via email

Session two: The vision of “Step Together - integrating care for people with epilepsy and a learning disability”

Welcome and introduction

Dr Roger Banks, National Clinical Director (Learning Disability), NHS England

Step Together - the report

Dr Rohit Shankar MBE, Consultant Neuropsychiatrist, Cornwall Partnership NHS Foundation Trust, Senior Clinical Lecturer Exeter Medical School and Project Lead- Step Together

Step Together – getting neurologists on board

Dr Rhys Thomas, Honorary Consultant in Epilepsy, Royal Victoria Infirmary and Intermediate Clinical Lecturer, Newcastle University

Step Together – children and transition

Professor Helen Cross OBE, Chair, International League Against Epilepsy (ILAE)

Holding service providers to account

Ms Angie Pullen, Epilepsy Services Director, Epilepsy Action

Standardising clinical delivery and training: The gold/silver/bronze model

Professor Matthew Walker, Chair, ILAE, British Chapter

Panel discussion

Chair: Dr Roger Banks 

Closing comments

Dr Martin Bollard, Immediate Past President, Intellectual Disability Forum, Royal Society of Medicine

End of webinar

Location

Online

Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations. 

Special rates for difficult times 

The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s COVID-19 online events are available free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic. 

Webinar recordings will be available for registered delegates up to 30 days after the live webinar, via Zoom. The link will be sent 24 hours after the webinar takes place. 

This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels. 

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