About this event

  • Date and time Tue 21 May 2019 from 9:00am to 6:00pm
  • Location Royal Society of Medicine
  • Organised by Intellectual Disability

Join us to get an important update on complex learning disabilities. We'll describe psychological and psychiatric management strategies used in complex ADHD and mood and psychotic disorders, which are all key problematic clinical areas seen in behavioural phenotype disorders. All delegates will be invited to engage in a panel discussion to develop the themes raised by leaders in their field.

The morning section of the event will provide professionals and carers who work with patients and clients with complex learning disabilities with an update on the evidence-based clinical management of three recognised behavioural phenotype disorders, namely Fragile X syndrome, Down syndrome and tuberous sclerosis. 

In the afternoon, the management of patients with complex learning disabilities will be further explored within a human rights-based framework. Attendees will acknowledge and debate the multiple Human Rights issues in the management of this vulnerable intellectual disability population.

You can view the full programme below for a information on speakers and lecture topics.

Key speakers

Dr Andrew Stanfield

Senior Clinical Research Fellow


View the programme

Session one

Registration, tea and coffee
Welcome and Introduction

Dr Martin Bollard, President of Intellectual Disability Section, The Royal Society of Medicine and Dr Ama Addo, Council Member, Intellectual Disability Section, The Royal Society of Medicine

Fragile X syndrome: Medication trials and associated tribulations

Dr Andrew Stanfield, Senior Clinical Research Fellow and Honorary Consultant Psychiatrist, University of Edinburgh

Questions and Answers
Tea and coffee break
Medical update on down syndrome

Dr Vicky Ho, Consultant Community Paediatrician, Lewisham and Greenwich NHS Trust and Dr Hilary Towse, Community Paediatric Speciality Trainee,  Evelina London Children’s Hospital

Questions and Answers
Behaviours in tuberous sclerosis complex

Dr Stacey Bissell, Post-doctoral Research Fellow, University of

Questions and Answers

Intellectual Disability Section annual general meeting (Members only)

Session two

Dr Kieran O’Malley

Introduction to session two

Chaired by Dr Kieran O’Malley

Behavioural phenotypes of genetic disorders: Trends, lessons and implications

Professor Christopher Oliver, Professor of Neurodevelopmental Disorders, University of Birmingham

Questions and Answers
Management of complex psychosis

Dr Bhathika Perera, Consultant Psychiatrist in Intellectual Disability, Haringey Learning Disability Partnership

Questions and Answers
Neuro-CAMHS: A specialist CAMHS service for children with neurodisabilities

Dr Fiona Snyder, Senior Clinical Psychologist, Neuro-CAMHS, Chailey Clinical Services

Questions and Answers
Tea and coffee break

Session three

Introduction to session three

Chaired by Dr Ama Addo

Treat Me Well & supporting people with a learning disability

Mrs Ciara Lawrence, Campaigns Support Officer, Royal Mencap Society

The use of healthcare law to ensure human right-based healthcare for people with learning disabilities

Ms Victoria Butler-Cole QC, Barrister, 39 Essex Chambers


Panel discussion
Wrap up and evaluation survey

Dr Martin Bollard, President of Intellectual Disability Section, The Royal Society of Medicine


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom