About this event

  • Date and time Wed 6 Mar 2019 from 8:30am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by General Practice and Primary Healthcare

This conference will focus on how frontline health and social care professionals can provide excellent end of life care and support for people of all ages and for vulnerable groups. Ensuring we can deliver first-rate care has been part of the national agenda for many years. However, there are still major concerns about the quality of services. 

With a programme developed by the RSM Section of General Practice with Primary Healthcare, with support from the Royal College of Nursing, the meeting will offer a practical approach to transforming end of life care as a team, coping with our own emotional experiences and enabling people to live the life they love and die where they choose.

This event has been developed by the RSM General Practice with Primary Healthcare Council with support from the Royal College of Nursing.

What will I gain from this event? 

You will learn how we can support all health and social care professionals who have to support others across the life span. We'll explore the policy, clinical, ethical, emotional and practical interventions to both care for patients and families, whilst caring for yourself at the end of life. We'll focus on vulnerable populations, with children, frail elderly and people with learning disabilities in particular. 

The three main themes

  • Understanding our vulnerabilities 
  • Exploring clinical support issues
  • You and your community: The role of Primary Care

Key speakers

Professor Irene Tuffrey-Wijne

Professor, Kingston and St George's Faculty of Health, Social Care and Education, and leads a programme of research aimed at improving the health care and end of life care of people with intellectual disabilities.

Professor Adrian Blundell 

Consultant and Associate Clinical Professor, and Member, Guideline Development Group, Clinical Guideline on Care of the Dying Adult NICE Associate Clinical Professor Nottingham University Hospitals NHS Trust

Dr Catherine Millington Sanders

Co-Founder and National Clinical Lead for Difficult Conversations multi- professional interactive training and National Clinical Champion for End of Life Care

Professor Jayne Price

Professor of Children's Nursing, Kingston and St George's Faculty of Health, Social Care and Education, and a Trustee of Shooting Star Chase Children's Hospices Surrey

Gemma Del Toro

Clinical Nurse Specialist Palliative Care Outreach, Derbyshire Community Health Services NHS Foundation Trust 


View the programme

Session one: Understanding our vulnerabilities

Chair: Dr Jeshni Amblum-Almér, Founder and Course Director, Belmatt Healthcare Training

Registration, tea and coffee
Transforming end of life care – is education the key?

Dr Paula Powell, Consultant in Palliative Medicine, Medical Director Willowbrook Hospice, Clinical Lead Cheshire and Merseyside Palliative and End of Life Care Network, Willowbrook Hospice, Prescot

Nana Xmas: Exploring life and death through story

Theresa Nash-Patel, Associate Professor, Nursing Founder and Co-Director Heritage2health© Buddy Scheme, read by Mr Eli Anderson, Master Storyteller, StoryAID

Death, dying and bereavement: The challenges and support needs of people with learning disabilities and their families

Professor Irene Tuffrey-Wijne, Professor of Intellectual Disability and Palliative Care, Kingston University and St George’s, University of London

Empowering or frightening? How to share uncertainty with patients

Dr Avril Danczak, Primary Care Medical Educator and GP, Health Education England, North West, Education and Research Centre, Wythenshawe Hospital, South Manchester NHS Foundation Trust

Tea and coffee break

Session two: Exploring clinical support issues

Chair: Dr Jeshni Amblum-Almér

The crystal ball? Predicting and recognising end of life - a multi professional approach

Professor Adrian Blundell, Consultant and Associate Clinical Member, Guideline Development Group, Clinical Guideline on Care of the Dying Adult NICE Associate and Clinical Professor, Nottingham University Hospitals NHS Trust

Living and Dying Well with Frailty

Professor Martin Vernon, National Clinical Director, Older People, NHS England, Manchester University NHS Foundation Trust

Your last 1000 days: Living and dying well with frailty

Dr Premila Fade, Consultant Geriatrician, London North West University NHS Trust, Dr Dawne Garrett, Professional Lead, Older People and Dementia Care, Royal College of Nursing

Background and development of the National Audit for end of life care and GP standards for end of life care

Dr Catherine Millington-Sanders, National Clinical Champion for End of Life Care


Session three: Children, young people and families

Chair: Ms Kathryn Yates, Director of Primary Care Nursing, Workforce, Innovation and Transformation, London Medical Council

Will it hurt when I die? Supporting children, families and carers at end of life

Professor Jayne Price, Professor of Children’s Nursing and Trustee of Shooting Star Children’s Hospices, Kingston University London and St George's, University of London and Ms Catherine van’t Riet, Trustee of Shooting Star Children’s Hospices

Exploring collaborative models and approaches to improving the care home experience for elders at the end of life

Dr Prem Fade and Dr Dawne Garrett

Session four: Workshops

Choose two of the four workshops at registration

Workshop A: Decision-making at the end of life. Advanced care planning for everyone?

Ms Victoria Butler-Cole, Barrister, Specialism in Mental Capacity Act, 39 Essex Chambers and Ms Natalie Koussa, Director, Community Outreach and Partnerships, Compassion in Dying

Workshop B: Managing uncertainty

Dr Avril Danczak, Primary Care Medical Educator and Trainer, Health Education England (North West)

Workshop C: Predicting and supporting end of life for people with learning disabilities - exploring available guidance, resources and tools

Mrs Gemma del Toro, Specialist Lead Trainer, End of Life and Dementia, Derbyshire Community Health Services NHS Foundation Trust and Ms Ruth Harrison, Lead Learning Disability Specialist Nurse, Sherwood Forest Hospitals NHS Foundation Trust

Workshop D: Care of self

Mr Eli Anderson, Master Storyteller

Tea and coffee break
Workshop rotation (continued)
Practicing in the ‘grey’; closing summary and evaluation

Theresa Nash-Patel

Close of meeting


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

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