Professor Irene Tuffrey-Wijne
Professor, Kingston and St George's Faculty of Health, Social Care and Education, and leads a programme of research aimed at improving the health care and end of life care of people with intellectual disabilities.
About this event
- Date and time Wed 6 Mar 2019 from 8:30am to 5:00pm
- Location Royal Society of Medicine
- Organised by General Practice with Primary Healthcare
This conference will focus on how frontline health and social care professionals can provide excellent end of life care and support for people of all ages and for vulnerable groups. Ensuring we can deliver first-rate care has been part of the national agenda for many years. However, there are still major concerns about the quality of services.
With a programme developed by the RSM Section of General Practice with Primary Healthcare, with support from the Royal College of Nursing, the meeting will offer a practical approach to transforming end of life care as a team, coping with our own emotional experiences and enabling people to live the life they love and die where they choose.
This event has been developed by the RSM General Practice with Primary Healthcare Council with support from the Royal College of Nursing.
What will I gain from this event?
You will learn how we can support all health and social care professionals who have to support others across the life span. We'll explore the policy, clinical, ethical, emotional and practical interventions to both care for patients and families, whilst caring for yourself at the end of life. We'll focus on vulnerable populations, with children, frail elderly and people with learning disabilities in particular.
The three main themes
- Understanding our vulnerabilities
- Exploring clinical support issues
- You and your community: The role of Primary Care
Key speakers
Professor Adrian Blundell
Consultant and Associate Clinical Professor, and Member, Guideline Development Group, Clinical Guideline on Care of the Dying Adult NICE Associate Clinical Professor Nottingham University Hospitals NHS Trust
Dr Catherine Millington Sanders
Co-Founder and National Clinical Lead for Difficult Conversations multi- professional interactive training and National Clinical Champion for End of Life Care
Professor Jayne Price
Professor of Children's Nursing, Kingston and St George's Faculty of Health, Social Care and Education, and a Trustee of Shooting Star Chase Children's Hospices Surrey
Gemma Del Toro
Clinical Nurse Specialist Palliative Care Outreach, Derbyshire Community Health Services NHS Foundation Trust
Agenda
View the programme
Session one: Understanding our vulnerabilities
Chair: Dr Jeshni Amblum-Almér, Founder and Course Director, Belmatt Healthcare Training
Registration, tea and coffee
Transforming end of life care – is education the key?
Dr Paula Powell, Consultant in Palliative Medicine, Medical Director Willowbrook Hospice, Clinical Lead Cheshire and Merseyside Palliative and End of Life Care Network, Willowbrook Hospice, Prescot
Nana Xmas: Exploring life and death through story
Theresa Nash-Patel, Associate Professor, Nursing Founder and Co-Director Heritage2health© Buddy Scheme, read by Mr Eli Anderson, Master Storyteller, StoryAID
Death, dying and bereavement: The challenges and support needs of people with learning disabilities and their families
Professor Irene Tuffrey-Wijne, Professor of Intellectual Disability and Palliative Care, Kingston University and St George’s, University of London
Empowering or frightening? How to share uncertainty with patients
Dr Avril Danczak, Primary Care Medical Educator and GP, Health Education England, North West, Education and Research Centre, Wythenshawe Hospital, South Manchester NHS Foundation Trust
Tea and coffee break
Session two: Exploring clinical support issues
Chair: Dr Jeshni Amblum-Almér
The crystal ball? Predicting and recognising end of life - a multi professional approach
Professor Adrian Blundell, Consultant and Associate Clinical Member, Guideline Development Group, Clinical Guideline on Care of the Dying Adult NICE Associate and Clinical Professor, Nottingham University Hospitals NHS Trust
Living and Dying Well with Frailty
Professor Martin Vernon, National Clinical Director, Older People, NHS England, Manchester University NHS Foundation Trust
Your last 1000 days: Living and dying well with frailty
Dr Premila Fade, Consultant Geriatrician, London North West University NHS Trust, Dr Dawne Garrett, Professional Lead, Older People and Dementia Care, Royal College of Nursing
Background and development of the National Audit for end of life care and GP standards for end of life care
Dr Catherine Millington-Sanders, National Clinical Champion for End of Life Care
Lunch
Session three: Children, young people and families
Chair: Ms Kathryn Yates, Director of Primary Care Nursing, Workforce, Innovation and Transformation, London Medical Council
Will it hurt when I die? Supporting children, families and carers at end of life
Professor Jayne Price, Professor of Children’s Nursing and Trustee of Shooting Star Children’s Hospices, Kingston University London and St George's, University of London and Ms Catherine van’t Riet, Trustee of Shooting Star Children’s Hospices
Exploring collaborative models and approaches to improving the care home experience for elders at the end of life
Dr Prem Fade and Dr Dawne Garrett
Session four: Workshops
Choose two of the four workshops at registration
Workshop A: Decision-making at the end of life. Advanced care planning for everyone?
Ms Victoria Butler-Cole, Barrister, Specialism in Mental Capacity Act, 39 Essex Chambers and Ms Natalie Koussa, Director, Community Outreach and Partnerships, Compassion in Dying
Workshop B: Managing uncertainty
Dr Avril Danczak, Primary Care Medical Educator and Trainer, Health Education England (North West)
Workshop C: Predicting and supporting end of life for people with learning disabilities - exploring available guidance, resources and tools
Mrs Gemma del Toro, Specialist Lead Trainer, End of Life and Dementia, Derbyshire Community Health Services NHS Foundation Trust and Ms Ruth Harrison, Lead Learning Disability Specialist Nurse, Sherwood Forest Hospitals NHS Foundation Trust
Workshop D: Care of self
Mr Eli Anderson, Master Storyteller
Tea and coffee break
Workshop rotation (continued)
Practicing in the ‘grey’; closing summary and evaluation
Theresa Nash-Patel
Close of meeting
Location
Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom