Patients and families as the new educators


Tuesday 20 October 2015


Venue Royal Society of Medicine
1 Wimpole Street
Organised by

Paediatrics & Child Health Section , RCPCH


5 CPD points

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about this event

This is a joint meeting organised by the Paediatrics & Child Health Section of the Royal Society of Medicine and the Royal College of Paediatrics and Child Health.

The study day is aimed at patients and professionals in paediatrics and primary care, commissioners and policy makers.

Delegates will be introduced to a range of national initiatives for the engagement of children, young people and their families. They will understand the wealth of talent, energy and resource that sits within patients and families and learn how to use it for their own services. The event will role model the involvement of service-users by including service-users in each and every talk.


Patients, families and health care professionals improving practice together, valuing and activating contributions, working in true partnership.


At the end of the meeting participants will:

  • Be familiar with examples of high quality engagement with patients and families who use child health services.
  • Will understand the approaches that are best suited to different ages.
  • Will know the value of listening to patients and families and the resource that is released by working in partnership and will learn techniques for doing this.
  • Will understand the link between quality of care and reciprocity of learning between professional and patient.


Join in the conversation online using #NewEducators


Young people, transition and self care

Dr Mando Watson, President, Paediatrics & Child Health Section, RSM

9.00 am

Registration, tea and coffee

9.20 am

Welcome to the day. Where are we currently?

Dr Mando Watson, President, Paediatrics & Child Health Section, RSM

9.30 am

London Clinical Senate’s work on Young Adults and Self-Care and introducing asset based approach to influencing inequalities in health

Samira Ben Omar, Self Care Programme Lead / AD Patient Experience and Equalities CWHHE Clinical Commissioning Groups and London Clinical Senate

10.00 am

Royal College of Physicians' Future Hospital Team: Welcoming and retaining young people in Adult Services, making it happen

Dr Andrea Goddard, Wolfson Clinical Fellow, Royal College of Physicians and Thines Ganeshamoorthy - citizen with lived experience

10.30 am

Adolescents – thinking differently

Dr Dougal Hargreaves, University College London

10.50 am

Panel discussion, Q and As and Twitter

11.00 am

Tea and coffee break

Working in equal partnership – young people leading the way

11.30 am

Untapping the hidden resource

Dr Sara Hamilton, Consultant Paediatrician, Whittington Health and Tofi Benson, Aimee Bonner, Cheyenne DeSouza

12.00 pm

Fixers: Young people using their past to fix the future

Maria Munir, Student, University of York

12.20 pm

Panel discussion, Q and As and Twitter

12.40 pm


Pushing the boundaries of possibility, moving beyond our comfort zones

Dr Kath Evans, Head of Patient Experience, NHS England

1.40 pm

Hugo's legacy: Parents as equal partners in neonatal care and when a baby dies

Miss Leigh Kendall, Writer, Blogger, Patient Leader, Headspace Perspective

2.00 pm

Learning from parents when things go wrong

Mrs Joanne Hughes, Founder, Mothers Instinct

2.20 pm

Incorporating patient feedback as a framework to change

Miss Chezelle Craig, Administrator, NHS

2.40 pm

Panel discussion, Q and As and Twitter

3.00 pm

Tea and coffee break

Ensuring we collaborate with those who are most vulnerable

3.25 pm

Working with local parent groups: Influencing local commissioners and national policy by using narrative Contact a Family and National Network of Parent Carer Forums

Sarah Thomas, CAF Health Manager and NNPCF Parent Representative and Karen Wooddisee, National Network of Parent Carer Forums East of England Representative

3.45 pm

Co-producing an ‘expert parent carer’ programme to grow parent educators What’s going on already, near you?

Amanda Allard, Assistant Director, Council for Disabled Children and Anna Walker, Parent and Consultant

4.00 pm

Disability Matters - A parent's perspective

Layla Brokenbrow, Programme Manager, Disability Matters (RCPCH) and Mrs Zoe Picton Howell, Parent Author, Disability Matters

4.15 pm

Panel discussion, Q and As and Twitter

Leigh Kendall, Joanne Hughes, Sarah Thomas, Amanda Allard

4.30 pm

Completion of evaluation forms

4.45 pm

Close of meeting

register for this event

  • Online registration is now closed.
  • Registrations are accepted on the day, however lunch is not guaranteed.
  • RSM member fees start at £35
  • Non member rates start at £45


View rates for all membership types:

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organiser's details

For information on this event, contact Andrea TorokTel: 02072902986 Fax: 02072902989 Email: arrow