About this event

  • Date and time Wed 27 May 2020 from 12:00pm to 1:00pm
  • Location Online
  • Organised by Digital Health

In this first webinar, Paul Wicks PhD, neuropsychologist and independent consultant in digital health, clinical trials, rare disease, and patient centricity, will explore how patients are harnessing patient generated health data for their own purposes. 

Technology is embedded into everyday life and it has become the norm to track our own health data; from the 'quantified self' movement that sees people tracking their diets, exercise, moods, symptoms, to patient-powered research networks who are conducting their own experiments and challenging scientific convention. 

Paul will examine a number of case studies such as the #WeAreNotWaiting movement who hacked their own diabetes devices, the ALS lithium study which saw an activated group of patients take trials into their own hands, and consider where the future of patient-harnessed data might be taking us.

Chaired by David Taylor, Patient Lead of the RSM Digital Health Council and Vice-Chair of The Patients Association, join us for this interactive webinar, with plenty of opportunities to pose your questions to Paul Wicks. 

A CPD certificate with 1 CPD credit will be issued to those joining the webinar live as well as those who watch the recording afterwards. Certificates will be issued 7 days after the webinar to those who watch it live and after 30 days for those that watch the recording. 

Join in the conversation online using #RSMDigiHealth
Follow us on Twitter: @RoySocMed

This meeting is a part of the Digital Health Section webinar series, The power of Patient Generated Data, that will be broadcast weekly on Wednesday afternoons at 12:00pm. This series will showcase digital health technologies used to collect data directly from patients that are available today and those in the research pipeline. If you would like to find out more about the series, please visit the Digital Health Section homepage.

 

Key speakers

Paul Wicks

Paul Wicks

Neuropsychologist and independent consultant in digital health, clinical trials, rare disease, and patient centricity

Speaker's biography

Paul Wicks PhD, is a neuropsychologist and independent consultant in digital health, clinical trials, rare disease, and patient centricity. For 13 years he led the R&D team at PatientsLikeMe, an online community for people over 700,000 people living with medical conditions.

 

Specialising in clinical research using the Internet, Paul shaped the scientific validity of the platform in generating insights from patient-generated health data, leading to over 110 studies including a patient-driven observational trial of lithium in ALS, numerous patient-reported outcome measures, a “dose-response” curve for the benefits of friendship between patients, and methods for patient-centered and virtual clinical trial designs. He sits on the editorial boards of the BMJ, BMC Medicine, JMIR, Digital Biomarkers, and The Patient.

 

Prior to joining PatientsLikeMe, Paul worked at the Institute of Psychiatry (King’s College London) studying cognition and neuroimaging in ALS, with a postdoc in psychological consequences of Parkinson’s disease. His work has been profiled by the BBC, NPR, CNN, BBC Radio 4, the Wall Street Journal, and the New York Times. In 2011 he was awarded MIT Technology Review’s TR35 “Humanitarian of the Year” award, recognized as a TED Fellow in 2012, and joined the inaugural FLIER Program at the Academy of Medical Sciences in 2019.

Agenda

View the programme

 

 

 

Welcome

 

Mr David Taylor, Digital Health Council Member, Royal Society of Medicine

Patient, digitise thyself: Digital healthcare and the patients conducting their own research

 

Dr Paul Wicks, Independent Consultant, Wicks Digital Health

Question and answer session

 

 

Close of meeting

 

 

Location

Online

Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM.

Special rates for difficult times 
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s COVID-19 online events are available free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic. 

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

All webinars will be available for registered delegates 30 days after on Zoom. The link will be sent 24 hours after the webinar takes place. 

This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels. 

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