About this event

  • Date and time Mon 10 May 2021 from 12:30pm to 5:30pm
  • Location Online
  • Organised by Clinical Neurosciences, Palliative Care

This webinar will explore how healthcare professionals can better manage the large group of patients who have neurological disorders at the end of life. 

Delegates will be updated on current ideas on symptom management in Parkinson’s disease, multiple sclerosis and epilepsy.

These patient palliative care needs differ from other patient groups and can be complex. There are a number of initiatives that have been developed including novel tools and rating scales that will be discussed and examined. 

Speakers from palliative and neurological backgrounds will present their areas of expertise in what promises to be an interesting educational day providing pragmatic clinical help for clinicians. 

Topics to be covered:

  • The palliative and end-of-life needs of patients with common neurological illnesses
  • Detail certain symptoms patients with movement disorders, stroke, multiple sclerosis and stroke may experience and how these might be managed 
  • Treatment options when neurological difficulties (e.g. seizures) occur at the end of life 
  • Share research insights and their practical applicability for advance care planning 
  • New tools to assess neurological patients near the end of life 
  • Techniques for approaching these topics in consultations 

Please note the agenda shown below is a provisional programme and may change due to speaker work requirements during the pandemic. The final programme will be confirmed nearer the event date.

CPD learning applied.

We would like to thank our sponsor UCB Pharma Ltd. for their support of this meeting. Please note that the scientific programme and content has not been influenced in any way by the sponsor.

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Key speakers

Dr Eileen Cowey

Senior Lecturer, University of Glasgow, UK

Speaker's biography

Dr Eileen Cowey is a senior lecturer in the Nursing and Health Care School at the University of Glasgow, and has a background in clinical stroke research. Her work has examined acute stroke care, including end-of-life care, catheterisation practices, pain management, decision-making and communication.

 

Most recently Dr Cowey has been involved in exploring palliative care needs following major stroke. She has also worked with Scottish clinical and academic colleagues to develop an online educational resource that supports acute stroke unit staff in holding difficult conversations with patients and families at the end of life.

 

Dr Cowey is Programme Director of the MSc (Med Sci) Advanced Practice in Health Care/MSc Advanced Nursing Science and teaches on the BSc (Hons) Nursing joint degree partnership between the University of Glasgow and Singapore Institute of Technology. She serves on the committee of the Scottish Stroke Nurses Forum.

Dr Amy Kingston

Consultant, Palliative Medicine, Royal Trinity Hospice and the Royal Hospital of Neurodisability, UK

Speaker's biography

Dr Amy Kingston attended university at UCL being awarded her medical degree and an intercalated BSc in Psychology. She has been a palliative medicine consultant since 2010 and was until recently, having decided to work 4 days a week, also a consultant at St Georges NHS Foundation Trust. She was awarded her FRCP in 2015.

 

Outside of medicine, she has interests in hockey, skiing and volunteers for Lowland Search and Rescue.

Dr Lina Nashef

Consultant Neurologist and Reader, King’s College Hospital, UK

Speaker's biography

Dr Lina Nashef is a Consultant Neurologist with an interest in epilepsy and Reader in Neurology at King’s College Hospital. She qualified in medicine at Bristol University in 1980 and trained in Bristol, Charing Cross, King’s College and the National Hospitals. She carried out research into Sudden Death in Epilepsy, the subject of her MD dissertation awarded in 1996. She became a fellow of the Royal College of Physicians in 2000 and previously served for 10 years on the DVLA neurology panel. She has co-edited a textbook on Neurology and Pregnancy and has many publications in the epilepsy field, including co-authoring the Oxford University Press Handbook on epilepsy. She serves on the council of the Association of British Neurologists. She has been a trustee within the charitable sector.

Dr Peter Foley

Consultant Neurologist, NHS Lothian, UK

Speaker's biography

Dr Foley is a Consultant neurologist with a particular interest in the application of the principles of palliative care to people living with progressive neurological disease. 

 

His PhD focused on the epidemiology and mechanisms of neuropathic pain in multiple sclerosis (MS). He led a clinical and neuroimaging study of patients with relapsing-remitting MS, who were affected by neuropathic limb pain. The study used a variety of novel methodologies including detailed neuropsychological assessment, and both structural and functional imaging of the brain, to assess whether patients' innate ability to modulate pain and its severity is damaged by multiple sclerosis. 

 

Peter now works within the NHS Lothian MS service, as well as contribute to general and acute neurology services and the Huntington's disease service. 

Agenda

View the programme

Welcome and introduction 
What is palliative in Parkinson's disease?

Dr Dominic Paviour, Consultant Neurologist, St George's Hospital, St George's University Hospitals NHS Foundation Trust

The impacts on family and patient

Catherine Parry, Parkinson’s Disease Nurse Specialist, St George’s Hospital, St George's University Hospitals NHS Foundation Trust

Comfort break and Sponsor Presentation

Valour Study – Lacosamide in PGTCS

Live presentation given by Nick Panton, HCAP. This session is optional and is sponsored by UCB Pharma

Multiple sclerosis advanced care planning

Emma Nicholas, Clinical Nurse Specialist Palliative care, Royal Trinity Hospice

Multiple sclerosis symptom management

Dr Amy Kingston, Consultant, Palliative Medicine, Royal Trinity Hospice and the Royal Hospital of Neurodisability

Using evidence to inform good care in stroke

Dr Eileen Cowey, Senior Lecturer, Nursing and Health Care School, University of Glasgow 

Palliative aspects of care in neurological disorders - what can realistically be achieved in a busy clinic?

Dr Peter Foley, Consultant Neurologist, NHS Lothian 

Tea and coffee break
Case presentation of end of life seizures

Dr Debbie Swann, Consultant Palliative Care, St Christopher's Hospice

Managing seizures in the palliative care patient?

Dr Lina Nashef, Consultant Neurologist and Reader, King's College Hospital NHS Foundation Trust and Dr Victor Pace, Consultant in Palliative Medicine, Darent Valley Hospital Dartford 

Panel discussion
Close of meeting

Sponsors

Location

Online

Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations.

Special rates for difficult times 
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s ​weekly COVID-19 Series ​webinars remain free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic.

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

This webinar will be recorded and stored by the Royal Society of Medicine and may be  distributed  in future on various internet channels. 

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