About this event

  • Date and time Tue 18 Nov 2025 from 8:45am to 5:15pm
  • Location Royal Society of Medicine
  • Organised by Paediatrics and Child Health

Join the UK’s leading annual gathering for healthcare professionals dedicated to cystic fibrosis (CF). Now in its 37th year, this in-person symposium is a cornerstone event for the CF community, providing a unique opportunity for education, networking, and sharing the latest developments in CF care.

Why Attend?

  • Gain a comprehensive overview of the most significant advances in CF care over the past 12 months, with a spotlight on new research and areas of high clinical interest.
  • Hear from leading clinicians and researchers on best practices and emerging trends in CF management.
  • Experience case presentations and educational sessions from up-and-coming CF clinicians, fostering professional growth and mentorship within the community.
  • Community Connection: Network with colleagues from across the UK, share experiences, and strengthen collaborative ties in CF care.

Programme Highlights

  • Highly Effective CFTR Modulator Therapy: Updated guidance on evolving practices, including respiratory sampling and the annual review process.
  • Mental Health and Behaviour: Explore current concerns and strategies for supporting the mental wellbeing of children and adults with CF.
  • Sweat Chloride Monitoring Debate: Evidence-based guidance and diverse viewpoints on sweat chloride monitoring in selecting CFTR modulator therapy—a topic of growing interest.
  • Year in Review & Fellows Rounds: Key conference highlights and case-based learning sessions covering multiple aspects of CF care.

Learning Outcomes

  • Receive up-to-date guidance on practice changes in the era of CFTR modulator therapy.
  • Enhance your understanding of respiratory sampling and the annual review process.
  • Broaden your perspective on mental health and behavioural challenges in CF for all ages.
  • Gain clarity on the role of sweat chloride monitoring in therapy selection through expert debate.
  • Acquire new knowledge from “year in review” and “fellows rounds” sessions, enriching your approach to CF care.

This symposium is designed for all professionals involved in the care of people with cystic fibrosis, including:

  • Consultants, SAS doctors, and doctors in training
  • Specialist nurses, physiotherapists, dietitians, and other allied health professionals
  • Students and retired fellows with a special interest in CF

Be part of the UK’s premier CF meeting - advance your knowledge, connect with peers, and help shape the future of cystic fibrosis care.

Call for Fellows’ cases:

  • The Fellows’ round session will include 4 cases from paediatric and adult departments. Each talk will be allocated 20 minutes, case presentations should last 10-15 minutes to allow 5-10 minutes for discussion.
  • If you would like to submit a case, please send a single side of A4 outlining the case and highlighting discussion points to: [email protected] and [email protected]
  • Deadline for case submission: Wednesday 1 October 2025

Register now to secure your place at this essential event.

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We would like to thank our sponsor Vertex Pharmaceutical for their financial support of this event. Our sponsors have had no influence or input into the agenda, content or organisation of this event.

Agenda

View the programme

Registration, tea and coffee

Welcome and introduction

Dr Rishi Pabary, Consultant in Paediatric Respiratory Medicine, Royal Brompton Hospital and Honorary Clinical Senior Lecturer, Imperial College London, and Dr Anna Shawcross, Consultant in Paediatric Respiratory Medicine, Royal Manchester Children’s Hospital

From symptoms to phenotypes: Insights from the GRAMPUS-CF Study

Dr Iain Stewart, National Heart and Lung Institute, Imperial College London, and Darren Sills, University of Nottingham and Nottingham University Hospitals NHS Trust

Tea and coffee break
Annual review process for the modern era

Kate Channon, CF Practitioner and Martina Kapatou, CF Clinical Nurse Specialist, King's College Hospital NHS Foundation Trust

Debate: Routine measurement of sweat chloride response, with the aim of normalising sweat chloride, should be used to guide CFTR modulator treatment choices

PRO - Dr Mike Waller, Consultant, King's College London
CON - Professor Peter Barry, Consultant, Manchester Adult CF Centre

Lunch
The psychological implications and side effects of highly effective cystic fibrosis transmembrane conductance regulator (CFTR) modulator therapy

Alistair Duff, Consultant Clinical Psychologist, Head of Paediatric Psychological Services, Leeds Children's Hospital, and Catherine O’Leary, Consultant Clinical Psychologist, All Wales Adult CF Service  

Quality of life, sleep and behaviour in children on elexacaftor-tezacaftor-ivacaftor

Isabelle Sermet Gaudelus, Professor in Paediatrics and Head of Paediatric Cystic Fibrosis Centre, Necker-Enfants Malades Hospital, Paris, France, and Kate Hill, European Cystic Fibrosis Society CTN Standardisation Committee 

Tea and coffee break

Fellows' round

Unapproved antenatal treatment of cystic fibrosis with ETI a case report

Alexander Mortimer, Birmingham Children's Hospital

Biopsychosocial complexity of pregnancy in an individual with CF

Laurie Rossiter and Dr Alexandra Boughey, Principal Clinical Psychologist, Liverpool Heart & Chest Hospital NHS Foundation Trust

The benefits of a shared care admission for a child with complex psychosocial needs

Becky Dobra, Watford General Hospital and Royal Brompton Hospital

A tempestuous tale of diagnosing anorexia nervosa in a patient with cystic fibrosis

Rachael O'Reilly, Royal London Hospital

What can the CF Trust offer my CF centre?

Rebecca Brendell, Head of CTAP and Sarah Clarke, Associate Director of Data and Quality Improvement, Cystic Fibrosis Trust

Close of meeting

Dr Anna Shawcross and Dr Rishi Pabary 

Sponsors

Vertex

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 1:00am on 17 November 2025. Late registrations will not be accepted.

The agenda is subject to change at any time

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion.

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations.