About this event

  • Date and time Thu 14 Dec 2023 from 9:30am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Nephrology, UK Kidney Association (UKKA), British Association for Paediatric Nephrology (BAPN)

Due to funding, the Nephrology Section is pleased to offer this event at a subsidised rate for participants.

Applicable to all healthcare professionals working with children and young adults living with kidney disease, in both paediatric and adult services, this one-day conference is aimed at increasing multidisciplinary collaboration to drive improvements to patient care.

Organised jointly with the UK Kidney Association (UKKA), British Association for Paediatric Nephrology (BAPN), London and North West Kidney Networks and the Ready Steady Go (RSG) - Tier Collaborative, this timely event will address the pertinent National Confidential Enquiry into Patient Outcome and Death (NCEPOD) report, ‘The Inbetweeners’, reviewing the barriers and facilitators in the process of the transition of children with complex chronic health conditions into adult health services.

Additionally, the event will explore the Renal Service Transformation Programme (RSTP) toolkit launch and other network activity, highlighting efforts to improve equity of access to best practice across kidney networks. It will also promote multidisciplinary team (MDT) working and including patient voices to provide holistic care and health literacy.

The meeting aims to:

  • Bridge a documented training gap, aiding trainees to better manage young adults with kidney disease
  • Equip healthcare professionals with the knowledge, skills and tools to empower the ‘In-betweeners’ and care-givers
  • Highlight the toolkits available and practical guides for local quality improvement 
  • Leverage the NCEPOD report, NICE guidelines, RSTP toolkit on Transition and collaborative network workstreams to promote multidisciplinary teamwork, break down silos and improve practice


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We would like to thank our sponsor Kidney Research UK for their support of this meeting.
Please note that the main scientific programme and content has not been influenced in any way by the sponsor.

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Key speakers

Holly Loughton

Holly Loughton

Young Adult Kidney Group Team Leader, Kidney Care UK

Speaker's biography

Holly was diagnosed with chronic kidney disease in her mid-20s, and frequently found herself feeling alone and isolated in dealing with her diagnosis. She vividly remembers sitting in hospital waiting rooms or being admitted to a ward, surrounded by other patients many years older than herself, some of whom were very unwell, and thinking “Is this what my life will be like one day?”.

The thought of having to give up her plans for the future, her career as a teacher and her desire for a family one day was an intimidating prospect, so in an effort to counteract this isolation and reach out to other people in the same situation, she co-founded Young Adult Kidney Group in 2016.

The YAKG fills the gap for “the inbetweeners”; patients who are too old for paediatric kidney care but who still may not fully identify with the issues faced by older kidney patients. It has been part of Kidney Care UK since April 2022 and now has over 1000 members, ranging in age from 18-30.

Our members come from a wide range of backgrounds and medical circumstances and collectively make Young Adult Kidney Group a supportive community of people who really understand what it’s like to be a young person with kidney disease.

Dr Alex Hamilton

Dr Alex Hamilton

Consultant in Renal Medicine, Royal Devon University Healthcare NHS Foundation Trust

Speaker's biography

Alex is a Consultant in Renal Medicine at the Royal Devon and Exeter Hospital, and Senior Clinical Tutor at the University of Exeter Medical School. In 2014 he undertook the Tony Wing Fellowship, using systematic reviews, survey and routine data to describe the clinical and psychosocial status of young adults on RRT and his work was recognised with the Raine Award from the UKKA. He is involved in SONG-kids and the UKKA Transition and Young Adult special interest group.

Dr Kay Tyerman

Dr Kay Tyerman

Consultant Paediatric Nephrologist, Leeds General Infirmary

Speaker's biography

Kay has worked as a paediatric nephrologist for nearly 20 years and consequently has seen many patients from early infancy through to adulthood. She is passionate about empowering CYP through shared decision-making during transition and advocating for better provision of services tailored to the needs of young adults. She also has expertise in AKI & haemodialysis. Kay is current Head of School of Paediatrics in Yorkshire and Humber plus Officer for Workforce Planning, RCPCH. 


View the programme

Registration, tea and coffee
Welcome and Introduction

Dr Allyson Egan, Consultant in Nephrology, Tallaght University Hospital and Royal Society of Medicine Nephrology Section President Elect

Session 1: Equity, service delivery and resources

Chairs: Dr Refik Gökmen, Consultant Nephrologist, Guy's and St Thomas' NHS Foundation Trust and Dr Caroline Booth, Paediatric Nephrology Consultant, Guy's and St. Thomas' NHS Foundation Trust

National Confidential Enquiry into Patient Outcome and Death

Dr Alun Williams, Consultant Surgeon, Nottingham University Hospitals

Ready steady go: TIER collaborative and delivering patient empowerment

Dr Arvind Nagra, Paediatric Nephrologist, Southampton Children's Hospital 

How to leverage renal services transformation programme transition toolkit

Dr Tina Chrysochou, Consultant Nephrologist, Northern Care Alliance NHS Foundation Trust

Panel discussion : Why has this been so difficult? Barriers to implementation
Tea and coffee break

Session 2: Service development in practice

Chairs: Dr Tina Chrysochou and Dr Dean Wallace, Consultant in Paediatric Nephrology, Manchester University NHS Foundation Trust

Patient perspective

Ms Holly Loughton, Young Adult Kidney Group Team Leader, Kidney Care UK

The UK Kidney Association activities

Dr Arvind Nagra, Paediatric Nephrologist, Southampton Children's Hospital and Dr John Stoves, Consultant Nephrologist, Bradford Teaching Hospitals NHS Foundation Trust

North west kidney network projects

Dr Amrit Kaur, Consultant in Paediatric Nephrology, Manchester University NHS Foundation Trust

London Kidney Network Projects

Dr Refik Gökmen, Consultant Nephrologist, Guy's and St Thomas' NHS Foundation Trust

Panel discussion : Lessons learned and aspirations
Lunch break

Session 3: Multidisciplinary team input and holistic care benefits

Chairs: Dr Arvind Nagra, Paediatric Nephrologist, Southampton Children's Hospital and Ms Holly Loughton, Young Adult Kidney Group Team Leader, Kidney Care UK

Speak, speak 2 and speak -PD

Dr Alex Hamilton, Consultant in Renal Medicine, Royal Devon and Exeter NHS Foundation Trust

Virtual presentation: Aspire and enable: the power of health-based youth work

Ms Sarah Shameti, Service Lead, University Hospital Southampton NHS Foundation Trust and Donna Hilton, Youth Service Manager, Nottingham University Hospitals NHS Trust

Would I lie to you?

Rosie Heape and Dr Lyndsay Hughes, Senior Lecturer in Health Psychology, King’s College London


Panel discussion : Trust and individual care
Tea and coffee break

Session 4: Hot topics and cross fertilisation of knowledge

Chair: Dr Allyson Egan, Dr Andi Cove-Smith, Consultant Nephrologist, Bart's Health NHS Trust

Lets talk about sex

Dr Kate Wiles, Consultant Obstetric Physician, Barts Health NHS Trust and Dr Ben Reynolds

Feedback from trainee survey

Dr Michelle Allan, Specialist Registrar in Renal Medicine

Medico-legal aspects of transition in neurodiversity and learning difficulty

Dr Dean Wallace, Consultant in Paediatric Nephrology, Manchester University NHS Foundation Trust

Cross fertilisation between adult and peadiatrics

Dr Joyce Popoola, Consultant Nephrologist, St George's University Hospitals NHS Foundation Trust, Dr Emma Salisbury, Consultant Nephrologist, Imperial College Healthcare NHS Trust, Dr Caroline Booth,Paediatric Nephrology Consultant, Guy's and St. Thomas' NHS Foundation Trust and Dr Kay Tyerman, Consultant Paediatric Nephrologist, Leeds Teaching Hospitals NHS Trust

Closing remarks
Close of meeting


Kidney Research UK 2021


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom


Registration for this event will close at 1:00am on Wednesday 13 December 2023. Late registrations will not be accepted.

The agenda is subject to change at any time

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion.

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations.

This event will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.

Domus - reception

While you’re attending this event

Why not stay in the comfort of our hotel, Domus Medica, book dinner in the restaurant, or even hire one of our private dining rooms to socialise with your peers?

RSM members enjoy access to our enviable club facilities. For more information, please contact our team at domus@rsm.ac.uk or restaurant@rsm.ac.uk.

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