About this event

  • Date and time Wed 11 Nov 2020 from 10:45am to 12 Nov 2020 at 4:00pm
  • Location Online
  • Organised by Nephrology

This free 2 day webinar will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. 

This is a multidisciplinary webinar where adult and paediatric vasculitis management will be examined. 

The themes highlighted are relevant to; renal, rheumatology, respiratory, ENT, dermatology and all other disciplines involved in vasculitis management.

The RSM is proud to partner this webinar with UKIVAS, a national rare diseases group co-chaired by Professor Mark Little and Dr Neil Basu.  

Webinar topics include:

  • The assessment and treatment of organ-specific manifestation in systemic vasculitis. 
  • UKIVAS registry activity update with an outline of recent national bioresource and genomic developments. 
  • New therapies in complement, new biologic combination approaches and trial pathways. 
  • Service development, quality improvement and communication networks. 

We would like to thank our sponsor Vifor Pharma UK for their support of this webinar. Please note that the scientific programme and content has not been influenced in any way by the sponsor.

Join in the conversation online using #RSMNephrology
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Agenda

View the programme - day one

Welcome address

Dr Allyson Egan, Chair, Care Pathways, UKIVAS, Past-President, Nephrology Section, Royal Society of Medicine and Dr Stephen McAdoo, President, Nephrology Section, Royal Society of Medicine and Treasurer, UKIVAS

UKIVAS introduction and welcome

Dr Neil Basu, Chair, UKIVAS, Senior Lecturer of Rheumatology, Honorary Consultant, University of Glasgow and Professor Mark Little, Chair, UKIVAS, Professor of Nephrology, Trinity College Dublin

Session one: Vasculitis registries

Chaired by Dr Nina Brown, Consultant Nephrologist, Salford Royal Hospital NHS Foundation Trust and Dr Neil Basu

An update on the UKIVAS registry

Professor Raashid Luqmani, Professor of Rheumatology, University of Oxford

COVID-19 and vasculitis: Characterising a novel virus in an immunosuppressed population

Dr Matthew Rutherford, Clinical Research Fellow, University of Glasgow

FAIRVASC – building vasculitis registry interoperability across Europe and beyond

Professor Mark Little

A retrospective cohort study to investigate sex-specific differences in ANCA-associated glomerulonephritis outcomes

Dr Jennifer Scott, Wellcome-HRB Irish Clinical Academic Training Fellow, Trinity College Dublin

Education working group update

Dr Nina Brown

Tea and coffee break - Vifor Pharma Group sponsored presentation

Achieving and sustaining remission in ANCA Associated Vasculitis – Real-world unmet needs
Professor Peter Rutherford

Session two: Vasculitis in the COVID-19 era

Chaired by Dr Taryn Youngstein, Consultant Rheumatologist, Imperial College Healthcare NHS Trust and Dr Stephen McAdoo

Clinical studies in COVID-19 - what have we learnt?

Professor Graham Cooke, NIHR Research Professor of Infectious Diseases, Imperial College London

(How) Should we change treatment for AAV in the face of COVID-19?

Dr Geetha Duvuru, Associate Professor of Medicine, Johns Hopkins University School of Medicine

Session three: Clinical trials and resources

Chaired by Dr Ruth Pepper, Consultant Nephrologist, Royal Free Hospital, Assosciate Professor, University College London and Professor Justin Mason, Professor of Vascular Rheumatology, Imperial College London

COMBIVAS: Delivering a trial during a pandemic

Dr Rachel Jones, Consultant Nephrologist, Vasculitis and Lupus Clinic, Cambridge University Hospital

RITAZAREM: Long-term follow-up

Dr Rona Smith, Senior Research Associate, Honorary Consultant Nephrologist, Vasculitis and Lupus Clinic, University of Cambridge

Maintenance - how long is sufficient?

Professor Lorraine Harper, Professor of Nephrology, University of Birmingham

Biologics in refractory vasculitis (BIOVAS) - an update on trial set up progress

Dr Maria King, Senior Clinical Trials Coordinator, University of Cambridge

Clinical trials: Questions and answers
Tea and coffee break
Registry working group update and scientific monitoring working group update

Dr Ruth Pepper

Prognostic tools - where to go from here

Dr Silke Brix, Consultant Nephrologist, Manchester University NHS Foundation Trust

UK GCA consortium and NIHR GCA and autoimmune vasculitis rare disease bioresources

Professor Ann Morgan, Professor of Molecular Rheumatology, Honorary Consultant Rheumatologist, University of Leeds

Session four: Classification and patient perspectives

Chaired by Dr Jacqueline AndrewsMedical Director, Harrogate and District NHS Foundation Trust and Professor Charles Pusey, Emeritus Professor of Medicine, Imperial College London

Patient reported outcomes in vasculitis and classification updates

Dr Joanna Robson, Consultant Senior Lecturer in Rheumatology, University of Bristol

Patient perspective in 2020

Julie Power, John Mills, Zoi Anastasa and Patricia Ryan

Closing remarks

Professor Charles Pusey

Close of day one
View the programme - day two

Welcome address

Dr Allyson Egan and Dr Stephen McAdoo

Session one: Therapeutic assessment, application and advancement

Chaired by Dr Sarah Mackie, Associate Professor in Vascular Rheumatology, University of Leeds and Professor Eamonn Molloy, Clinical Professor, University College Dublin School of Medicine, Consultant Rheumatologist, St Vincent's University Hospital

Experiences with a fast track GCA service during the COVID-19 pandemic

Dr Sarah Mackie

Immunomodulatory treatment of COVID-19

Dr Taryn Youngstein

New advances in the treatment of large vessel vasculitis

Dr Maria Cid, Associate Senior Consultant, Department of Autoimmune Diseases, Hospital Clinic, Associate Professor, Univeristy of Barcelona, Senior Group Leader, Institut d’Investigacions Biomèdiques August Pi i Sunyer

Tea and coffee break

Session two: Organ involvement in vasculitis

Chaired by Dr Tina Chrysochou, Immediate Past President, Nephrology Section, Royal Society of Medicine, Consultant Nephrologist, Salford Royal Hospital NHS Foundation Trust and Dr Neeraj Dhaun, Council Member, Nephrology Section, Royal Society of Medicine, UKIVAS Academic Group, Consultant Nephrologist, University of Edinburgh

Lessons from renal biopsy in 2020

Professor Ingeborg Bajema, Professor of Pathology, Leiden University Medical Centre

ENT manifestations and management in AAV

Dr Marcos Del Pero Martinez, Consultant, ENT, Vasculitis and Lupus Clinic, Cambridge University Hospital, West Suffolk NHS Foundation Trust

Respiratory disease in AAV

Dr Paupathy Sivasothy, Consultant, Respiratory Vasculitis and Acute Medicine, Vasculitis and Lupus Clinic, Cambridge University Hospital

Session three: Plenary session: Novel therapeutics

Chaired by Dr Irmgard Neumann, Consultant Nephrologist, Specialist for Autoimmune Diseases and Vasculitis

Complement therapy in AAV

Professor David Jayne, Professor of Clinical Autoimmunity, University of Cambridge

Tea and coffee break

Session four: Pathways

Chaired by Dr Allyson Egan and Dr James Peters, Reader in Rheumatology, UKRI Innovation Fellow, Health Data Research UK, Imperial College London

Care pathway working group update

Dr Allyson Egan

Understanding service delivery and flexibility in the COVID-19 era - the VOICES project

Dr Rosemary Hollick, Senior Clinical Lecturer, Honorary Consultant Rheumatologist, University of Aberdeen

RECORDER results: Risk of death during the 2020 UK COVID-19 epidemic and annual influenza seasons among people with vasculitis compared to the general population

Dr Megan Rutter, Clinical Research Fellow, Faculty of Medicine and Health Sciences, University of Nottingham and Dr Fiona Pearce, Clinical Associate Professor, Faculty of Medicine and Health Sciences, University of Nottingham

National emerging themes in vasculitis from Getting It Right First Time

Dr Peter Lanyon, Consultant Rheumatologist, Nottingham University Hospitals NHS Trust, Joint National Clinical Lead for Rheumatology, Getting It Right First Time (GIRFT), NHS Improvement

Session five: Paediatrics and messages from IgA nephropathy

Chaired by Dr Reem AlJayyousi, Consultant Nephrologist, University Hospitals of Leicester NHS Trust and Dr Chee Kay Cheung, Consultant Nephrologist, Honorary Senior Lecturer, University Hospital of Leicester NHS Trust

Standardising clinical care for IgA vasculitis (HSP) and communication working group update

Dr Louise Oni, Senior Lecturer, Paediatric Nephrology, Honorary Consultant Paediatric Nephrologist, Alder Hey Children’s Hospital

Harnessing registries, bioresources, biobanks and the patient voice to deliver research in rare kidney diseases - what we have learnt from experiences in IgA nephropathy

Professor Jonathan Barratt, The Mayer Professor of Renal Medicine, University of Leicester

Tea and coffee break

Session six: Clinical case discussions

Chaired by Dr Allyson Egan and Dr Stephen McAdoo

Clinical case discussions

Panel formed of Professor David Jayne, Professor Ann Morgan, Professor Alan Salama, Professor of Nephrology, University College London, Department of Renal Medicine, Royal Free Hospital, Dr Maria Cid and Professor Justin Mason

Presentations by Dr Andrew Porter, Wellcome Trust Clinical Research Fellow, Rheumatology Registrar, Professor Alan Salama, Dr Silke Brix and Professor Mark Little

Closing remarks

Dr Neil Basu and Professor Mark Little

Close of day two

Sponsors

Location

Online

Disclaimer: All views expressed in this webinar are of the speakers themselves and not of the RSM nor the speaker's organisations.

Special rates for difficult times 
The RSM wishes to offer healthcare professionals continued learning opportunities during the coronavirus pandemic. The RSM’s ​weekly COVID-19 Series ​webinars remain free of charge, while there will be small charges to register for other online education. These fees will enable the RSM to continue its programme of activities and will apply during the course of the pandemic.

Registration for this webinar will close 2 hours prior to the start time. You will receive the webinar link 2 hours before the meeting. Late registrations will not be accepted.

This webinar will be available for registered delegates 30 days after on Zoom. The link will be sent 24 hours after the webinar takes place. 

This webinar will be recorded and stored by the Royal Society of Medicine and may be  distributed  in future on various internet channels. 

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