About this event

  • Date and time Fri 1 May 2020 from 9:00am to 5:30pm
  • Location Royal Society of Medicine
  • Organised by Nephrology

This meeting will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. 

This is a multidisciplinary event where adult and paediatric vasculitis management will be examined. 

This event is relevant to; renal, rheumatology, respiratory, ENT, dermatology and all other disciplines involved in vasculitis management.

The RSM is proud to partner this event with UKIVAS, a national rare diseases group co-chaired by Professor Mark Little and Dr Neil Basu.  

Topics include:

  • The assessment and treatment of organ-specific manifestation in systemic vasculitis. 
  • UKIVAS registry activity update with an outline of recent national bioresource and genomic developments. 
  • New therapies in complement, new biologic combination approaches and trial pathways. 
  • Service development, quality improvement and communication networks. 

Join in the conversation online using #RSMNephrology
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Standard pricing available until 30 April 2020.


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View the programme

Welcome and registration

Session 1: Organ specific manifestations in vasculitis

Chairs: Professor Justin Mason and Dr Taryn Youngstein

Ear, nose and throat manifestations in vasculitis

Dr Marcos Martinez Del Pero

Airway and lung disease in vasculitis

Dr Pasupathy Sivasothy

Neurological disease in vasculitis

Speaker to be confirmed

Case presentations

Dr Helen Alderson, Dr Jennifer Scott, Dr Megan Rutter, and Dr Jennifer O’Brien

Tea and coffee break

Session 2: UKIVAS: Progress of the registry and working groups

Chairs: Professor Mark Little and Dr Neil Basu

An update on the UKIVAS registry

Professor Raashid Luqmani

Registry reporting and scientific monitoring

Dr Silke Brix and Dr Ruth Pepper

Anti-GBM disease in the United Kingdom

Professor Alan Salama

Communication updates and networking

Mrs Sarah Hardy

Leveraging data linkage in rare autoimmune diseases

Dr Fiona Pearce

GCA Tocilizumab registry and NIHR GCA and vasculitis bioresources

Professor Ann Morgan

Standardising clinical care for IgA vasculitis (HSP)

Dr Louise Oni

Lessons learnt from IgA nephropathy

Professor Jonathan Barratt


Session 3: Care pathways, service development and trials and guidelines

Chairs: Dr Allyson Egan and Dr Thomas Hiemstra

Autoimmune care pathways

Dr Allyson Egan

Vasculitis networks in Scotland

Dr Rosemary Hollick

National emerging themes in vasculitis from Getting it Right First Time

Dr Peter Lanyon

Patient reported outcomes in vasculitis and classification updates

Dr Jo Robson

Clinical trials update: BIOVAS, COMBIVAS, Anti-IL5 therapy

Dr Maria King, Dr Rachel Jones and Dr Allyson Egan

Application of recent guidelines and trials: Case based discussions

Panel discussants: Dr Rachel Jones, Dr Jimmy Peters, Dr Stephen McAdoo and Dr Sarah Mackie

Tea and coffee break

Session 4: Therapeutics and patient-centred precision medicine

Chairs: Dr Bean Dhaun and Dr Ruth Pepper

Complement therapy in AAV

Professor David Jayne

Genomics in vasculitis

Dr Paul Lyons

Vasculitis: A patient’s perspective in 2020

Mr John Mills

Complex case presentations and discussion

Panel discussants: Professor David Jayne, Dr Jackie Andrews, Professor Alan Salama and Professor Ann Morgan

Close of meeting

Completion of evaluation forms


Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom