About this event

  • Date and time Tue 20 Nov 2018 from 9:00am to 5:30pm
  • Location Royal Society of Medicine
  • Organised by Paediatrics and Child Health

This annual event is suitable to all members of the multidisciplinary team who care for adults or children with cystic fibrosis (CF).

Delegates will be updated and informed of current best practice and future developments in CF care.

Topics include:

  • New and emerging therapies
  • NICE CF guidelines
  • Diagnosing respiratory infections and CF
  • Yearly review

 

Agenda

View the programme

Session one

Registration, tea and coffee
Introduction and welcome

Professor Iolo Doull, Consultant in Paediatric Respiratory Medicine, Children's Hospital for Wales, Cardiff

Is it cystic fibrosis?

Dr Nicholas Simmonds, Associate Director and Consultant Respiratory Physician, Adult Cystic Fibrosis Centre, Royal Brompton and Harefield NHS Foundation Trust and Honorary Clinical Senior Lecturer, Imperial College London

How best to diagnose respiratory infections in children

Dr Julian Forton, Consultant in Paediatric Respiratory Medicine, The Children’s Hospital for Wales, Cardiff

Tea and coffee break

Session two

Treatment for rare cystic fibrosis mutations

Professor Dr Christiane De Boeck, Pediatric Pneumologist, Department of Paediatrics, University of Leuven, Belgium

The NICE cystic fibrosis guideline

Professor Martin Walshaw, Consultant Chest Physician and Director, Specialist Regional Adult Cystic Fibrosis Clinic, Liverpool Heart and Chest Hospital

Lunch
New and emerging therapies for cystic fibrosis

Professor Jane Davies, Professor of Paediatric Respirology and Experimental Medicine, Imperial College London and Honorary Consultant, Royal Brompton and Harefield NHS Foundation Trust

Which pathogens should we worry about?

Professor Andrew Jones, Centre Director, Manchester Adult Cystic Fibrosis Centre

Tea and coffee break

Session three : Fellows' round (5 X 15 minutes cases)

"Fortunate are those who take the first steps”? The biopsychosocial impact of novel drug development

Dr Rebecca Dobra, Clinical Research Fellow, Imperial College London and Royal Brompton Hospital and Harefield NHS Foundation Trust

Amyloidosis in a cystic fibrosis patient

Dr Tom Simpson, ST7 Respiratory and General Medicine, South London Hospital for Women and Children

Cystic Fibrosis Screen Positive, inconclusive diagnosis: The D1152H mutation dilemma

Dr Thanuja Krishnananthan, Paediatric Cystic Fibrosis Clinical Fellow, Royal London Hospital

Implications of fatherhood in cystic fibrosis

Brooke Bianco, Cystic Fibrosis Research Nurse, Manchester Adult Cystic Fibrosis Centre and Manchester Clinical Research Facility

Newborn screening for cystic fibrosis: Benefit for everyone

Dr Chris Course, ST5 Paediatric Registrar, University Hospital of Wales, Cardiff

Session four

Year end review

Dr Ian Balfour-Lynn, Consultant Paediatric Respiratory Medicine and Director of Paediatric Cystic Fibrosis, Royal Brompton Hospital and Harefield NHS Foundation Trust

Close of meeting

Sponsors

PARI

Location

Royal Society of Medicine, 1 Wimpole St,, Marylebone, London, London, W1G 0AE, United Kingdom