About this event
- Date and time Thu 27 Feb 2025 from 12:30pm to 4:30pm
- Location Royal Society of Medicine
- Organised by Medicine and Me, The Haemophilia Society
Explore future care and treatment for people with a genetic bleeding disorder at this interactive event, run in collaboration with the Haemophilia Society.
Knowledge of genetic bleeding disorders, such as haemophilia and von Willebrand disorder (VWD), has increased dramatically in the last few decades, resulting in big breakthroughs in treatment and care. Today, with gene therapy available on the NHS and safe, effective treatment accessible to most people with a bleeding disorder in the UK, the poor quality of life and low life expectancy once experienced by those affected are a thing of the past, and new technologies underpinned by increasingly sophisticated research and data hold promise for further life-changing developments ahead.
Join us in person to hear from people with lived experience of a bleeding disorder as well as leading experts in the care and treatment of haemophilia, VWD and other rare disorders as they discuss current best practice, what future care will look like, and how best we meet the needs of the bleeding disorder community.
By attending this meeting, you will:
- Learn about current best practice, clinical networks and latest treatment advances.
- Share experiences and provide feedback on what matters most to you living with a bleeding disorder.
- Meet leading haematologists, scientists, and the Haemophilia Society team to gain insights into national care delivery and the charity's work.
- Connect with others living with genetic bleeding disorders.
Tickets
Standard pricing available until 26 February 2025.
Member
RSM Student | RSM Associate | RSM Fellow | RSM Retired Fellow | RSM Trainee |
---|---|---|---|---|
£0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
Non - Member
Consultant / GP / SAS Doctors | AHP / Nurse / Midwife | Non Healthcare Professional | Patient / Carer / Relative | Student | Trainee |
---|---|---|---|---|---|
£0.00 | £0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
Agenda
View the programme
Registration, tea and coffee
Welcome and introduction
Session 1: New treatment options for all
Examining current and future innocations in treatment
Panel discussion: How do we ensure equality of access to innovative treatments?
Session 2: Adapting the structure of care for the future
What should the future structure of care delivery look like?
Panel discussion: How do we achieve equity of care for all?
Tea and coffee break
Session 3: Future challenges
What keeps me awake at night
Panel discussion: Patient hopes for the future
Closing remarks
Close of meeting
Location
Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom
Registration for this event will close at 1:00am on Wednesday 26 February 2025.
Late registrations will not be accepted.
The agenda is subject to change at any time
If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion.
All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations.