Patient support group links

• The Alzheimer’s Society
  The Alzheimer’s Society is the UK’s leading care and research charity for people with dementia, their families and carers.
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• Autism London
  Autism london is a funded registered charity, originally formed in 1984 by parents concerned about the lack of provision for people with autism and Asperger syndrome.
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• Best Treatments
  Best Treatments in an evidence based decision support service for patients, where patients can get up-to-date and reliable information about their medical condition.
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• Bladder and Bowel Foundation
  The Bladder and Bowel Foundation (B&BF) is the UK charity for people with bladder and bowel control problems. Formed in 2008, it replaces Incontact (formed in 1989) and the Continence Foundation (closed May 2008).
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• Blood Pressure Association
  Aims to draw attention to the need to improve detection, management and treatment of high blood pressure.
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• Breast Cancer Care
  Providing breast cancer information and support across the UK. We are committed to providing accessible, high-quality services for everyone affected by breast cancer. All our services are free and include a helpline, website, publications, and practical and emotional support.
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• British Dietetic Association
  The professional association for dieticians.
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• British Heart Foundation
  A national charity investing in research, support and caring for heart patients and providing information to help people reduce their own risk of dying prematurely from a heart or circulatory related illness.
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• British Red Cross
  The Red Cross and Red Crescent Movement is the largest independent humanitarian network in the world, with more than 100 million members across the globe.
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• British Tinnitus Association
  The British Tinnitus Association is a world leader in providing support and advice about tinnitus.
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• Cancer.gov
  The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
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• Cancer Research UK
  This website is for anyone who wishes to know more about the charity, about cancer, or how to play a part in our vision to cure cancer faster.
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• Carers UK
  Carers UK is an organisation of carers which seeks to improve carers' lives. We provide information, support and training and campaign for changes that make a real difference to carers' lives.
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• Coeliac UK
  One of the largest donation funded charities of it's kind, supporting 55,000 members living with coeliac disease, dermatitis herpertiformis and related conditions.
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• Cystic Fibrosis Trust
  Funds medical and scientific research aimed towards understanding, treating and curing Cystic Fibrosis.
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• Dementia Relief Trust
  A charity improving the quality of life for people affected by dementia.
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• Disabilities Trust
  A national charity, providing modern, purpose-built accommodation and a full variety of support facilities for adults with a wide range of disabilities and special needs.
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• Epilepsy Action
  Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK's estimated 440,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.
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• FPA
  Working with the public and professionals to ensure high quality information and services are available to everyone who needs them.
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• The Haemophilia Society
  The Haemophilia Society is working to secure the best possible care, treatment and support for people with haemophilia or a related bleeding disorder and their families.
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• H·E·A·R·T UK
  A national charity for patients and their families supporting all those at risk of inherited high cholesterol and cardiovascular disease.
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• Help the Aged
  A charity committed to addressing the issues that matter to older people.
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• IBS Network
  The mission of the IBS Network is to inform, support, and educate those with IBS and their families and carers; to improve the quality of life of those with IBS and to raise public awareness of IBS and the issues surrounding this condition.
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• KNEEguru
  A website for patients providing concise information about knee injuries and treatments.
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• Macmillan Cancer Support
  Up-to-date cancer information, practical advice and support for cancer patients, their families and carers.
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• Macular Disease Society
  The Macular Disease Society is a self-help society for those suffering from any of the eye conditions encompassed by the overall name of Macular Disease.
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• Marie Curie Cancer Care
  A site for anyone looking for information about the charity's work with cancer patients and their families across the UK.
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• Mencap
  A learning disability charity working with people with a learning disability and their families and carers.
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• Ménière's Society
  Ménière's disease is a long-term progressive condition affecting the balance and hearing parts of the inner ear. Symptoms are acute attacks of vertigo (dizziness), fluctuating tinnitus and increasing deafness. The Ménière's Society is the only UK organisation dedicated to supporting sufferers of Ménière's disease and other vestibular conditions causing dizziness and imbalance.
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• Meningitis Trust
  The Meningitis Trust is an international charity with a strong community focus.
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• The Mesothelioma Cancer Center (www.asbestos.com)
  This American website provides comprehensive information and treatment advice on Mesothelioma in a bid to spread awareness of the dangers of being exposed to asbestos.
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• Migraine Trust
  The Trust is committed to supporting sufferers and their families by funding and promoting research, improving diagnosis and treatment, providing information and advice, and raising awareness of migraine as a significant public health problem.
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• MIND
  Mental health charity offerring advice on mental health issues, campaigning for better services, legal rights, and for a more accepting attitude among employers, and advising Government, health and local authorities and the public on best practice, services and developments in mental health community care.
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• Motor Neurone Disease Association
  The only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.
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• The Multiple Sclerosis Society
  The MS Society is the UK's largest charity for people affected by Multiple Sclerosis (MS) - about 85,000 people in the UK.
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• National Association for Colitis and Crohn's Disease (NACC)
  NACC offers information and support services to people who are living with Inflammatory bowel disease (IBD) and raises funds to support research into the medical, health care, social and psychological aspects of IBD.
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• National Asthma Campaign
  A charity funding research into asthma in the UK.
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• National Endometriosis Society
  Founded in 1981 the is a UK charity devoted exclusively to this disease.
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• National Osteoporosis Society
  The only UK-wide charity dedicated to improving the diagnosis, prevention and treatment of osteoporosis.
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• National Society for Epilepsy
  The National Society for Epilepsy is committed to providing information and support to people with epilepsy. We also provide care for people with epilepsy through medical and residential services.
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• Parkinson's Disease Society
  A registered charity providing support, advice and information to people with Parkinson’s, their carers, families and friends, and to health and social services professionals involved in management and care.
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• Patient Information Publications
  A UK site aiming to help non-medical people and health professionals find online information about health issues.
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• Pernicious Anaemia Society
  The Pernicious Anaemia Society is a registered charity. We strive to improve current and future diagnosis and treatment of Pernicious Anaemia, whilst providing support, help and information to sufferers, their families and friends.
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• Royal National Institute of the Blind (RNIB)
  A charity offering information, support and advice to over two million people with sight problems.
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• RNID
  RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK.
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• Sense about Science
  Sense about Science have launched an Evidence-Based Medicine Matters opinion board, to mark the 40th anniversary of the Medicines Act (1968) and the start of a two-year season of activities by Sense About Science on why evidence-based medicine matters. On the site you can find stories from doctors, scientists, nurses, patients, professional societies, journal editors, patient groups and other members of the public about why evidence-based medicine matters to them.
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• Sickle Cell Society
  The Society provides a wide range of services from information, advice and counselling, to financial help, holidays, briefings, seminars and training.
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• Stroke Association
  The Stroke Association provides support for people who have had strokes, their families and carers. We campaign, educate and inform to increase knowledge of stroke at all levels of society.
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• TB Alert
  The UK’s National Tuberculosis Charity provides: a helpline for patients, people concerned about TB, non-specialist staff and professionals working with groups at risk of TB; leaflets and resources for people with TB; support for patients and TB nursing staff in the UK.
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• Terrence Higgins Trust
  THT is the leading HIV & AIDS charity in the UK and the largest in Europe. It was one of the first charities to be set up in response to the HIV epidemic and has been at the forefront of the fight against HIV & AIDS ever since.